Looking for a video

[belle9]

I have searched all over Youtube to try and find a video I saw on this site. It is a video with a family in Oklahoma, I believe. The man died of ALS type symptoms covered in lesions, his wife has it and is barely ambulatory, and now the children have it as well. The doctor helping them is a woman. I think ABC News did the coverage. It is fairly old and pretty darn scary. Does anyone have the link to this? I would be very grateful if you would post it.

[tcmgpt13]

Belle, they live in Florida:

For Anne Dill, standing in her backyard, looking over the lake is physically and emotionally painful.

This silence and solitude serves as a constant reminder of what her family is facing.

"We're going to lose everything, our house, our dreams," says Dill.

Five years ago, the dills bought their dream home in Lake City. They spent most of their free time at their lake with friends, and thought life was pretty close to perfect.
Then, three years ago, Anne, her husband and their four children all got very sick at the very same time.

They think they have Morgellons, even though they have no idea how they would have contracted it.

Morgellons is an unusual parasite-like skin disease, which produces irritating sores all over the body.

These sores ooze blue fibers, white threads and little black specks of sand-like material.

The Dills say they're also plagued with a constant, creepy crawling feeling of bugs under their skin.

However, the most agonizing symptom is the chronic fatigue. The Dills are so tired and so weak, they spend nearly all of their time, at home.

The father, Tom Dill is the sickest. Along with the Morgellons, he's developed signs of Lou Gehrig's disease. It's a neurological disorder that robbed him of his muscle control. He's now bound to a wheelchair and has trouble speaking. Tom doesn't know if his two conditions are related. That has him worried about his children.

“I don't want to believe that what happened to me, happened to them."

But answers are hard to come by. In fact, doctors tell them the "bugs" they feel and sores they see, are only in their minds. In medical terms, they are delusional parasitosis.

"I don't know how a doctor couldn't see that, it's ridiculous, I can see it, I know there's something there, I'm like a freshman in high school and I know that there's something wrong."

Doctor Hardesh Garg is an internal medicine specialist in Jacksonville. He isn't surprised by the reaction the dills have been getting from doctors.

"A lot of times, not all of us, who feel like, if it doesn't exist in my medical book, it really doesn't exist and it must be a figment of your imagination," says Garg.

Doctor Garg has never seen a patient with Morgellons. However, he says this skin condition needs to be studied.

“Until we know what's causing it, can't say if it's infectious or not or how dangerous it is."

No doctors on the First Coast or Florida could be found who know anything about Morgellons.


Morgellons Disease: Mysterious Scabies And Ecto-Parasites Found Under Human Skin


Anne Dill describes a similar condition. Looking at Dill's life, it appears as if she's living an idyllic existence in a home on Florida's Lake Mary. Her three daughters excel in sports and are straight-A students.

But life in the Dill household is far from idyllic. Anne's 40-year-old husband, Tom, died in January and she believes his death was due to a contagious illness that has infected her entire family.

Dill describes her family's skin: "There's this fibrous material. It's in layers." Dill says the skin on their hands is particularly bad, very swollen and itchy. She says it feels as if bugs are crawling underneath the skin.

'Morgellons' Mystery - ABC News

[tcmgpt13]

I think the whole video Anne Dill made with her family has now been removed from ABC news. I did a search of their website. Here's a short clip which features Anne talking to a reporter. The interview was tucked in with an old political story. Her name is not mentioned in this clip, but I also located the written transcript of this interview where she is identified by name in a photo:

Nightline Webcast: Mystery Disease - ABC News

Here's the written version with Anne's photo:

Mysterious Skin Disease Causes Itching, Loose Fibers - ABC News

The doctor who is in this clip is the typical brick wall many Morgellons patients have encountered. He appears infuriatingly smug in his certainty this is a self-inflicted disease (he admitted in this clip he had never seen a Morgellons patient).

[dizzy dame]

wow Tc, this Dr. makes me just want to go and slap somebody! Self inflicted! . think they have parasites! I wish! GRRR! DD

[tcmgpt13]

Yes, DD, even though this is an old clip it's still aggravating to see a doctor get on national T.V. and pontificate about a disease he has not even seen in a single patient. How on earth can he make such a judgment? No wonder most patients have no chance with the doctors they do see when a news organization picks out a doctor who has never seen ONE patient who has Morgellons to be on the same film clip as a Morgellons patient. Of course most people who see this clip will believe the doctor. It is easy to see how "fair and impartial" most news organizations are these days. All "news" needs to be taken with a grain of salt when such sloppy reporting is evident as it is here.