We have to be open minded about CDC report

[janedoe]

maybe i do like to simplify stuff, but if the doctors treat us, do we really care about the stupid CDC? sorry if dumb question.. is anybody trying to get SSI? is that why we care? personaly i dont like to but my head against a wall thats not hearing me, but doctors have been cool so who cares about CDC? they'll learn when their family members get it, right?

[Janice]

Good morning!!

I know what you mean. The only thing is not every one is finding doctors to help them. I think we just want to know for sure, what it is,...

[janedoe]

Originally Posted by Janice

Good morning!!

I know what you mean. The only thing is not every one is finding doctors to help them. I think we just want to know for sure, what it is,...

your absolutly right...begs the question why not? are people from such remote towns they have only one doc to choose from? most towns in america i know, if you want it bad enough, take a bus to the nearest town and pay cash for the doc? what ,in your opinion, is keeping people from good docs? i understand fear, thats why i went out of town formine..emergency room here in santa maria will lock you up 72 hours if you mention morgellons, so , knowing this, i went to santa ynez...they were the first to tell me morgellons.. that was after i had the nurse pick one of these badoys out my breast, they kinda couldnt ignore me.. but if a doc blows a person off, dont go back, i mean, right?

[belle9]

Jane,
Doctors have been labeling me delusional, not treating me. I get sicker and sicker and they make loads of money off my insurance and prescribe me antipsych drugs. The drug one prescribed can seriously lower white blood count. Mine is already dangerously low. Now my hemoglobin and hematocrit are down as well (from April to end of May). The CDC is a bunch of federal bureaucrats who may be bought by the people causing this, afraid of a public panic, or do not want every dermatologist in the country involved in some serious lawsuits. It could be all three. I just want some help before this stuff kills me (which it could fairly quickly) and those I love.

[janedoe]

may i ask what meds your on? PM me if you dont want to post.. ssee, i was on pyc meds 25 years ago, not for morgies, but for mental health reasons.. i got off them, i was up to 5 wellbutrin, seroquel, buspar, cymbalta and trazadone.. at the same time.. id tried akmost every med they had, still had the depressions and even agoraphobia...
maybe thats why im not called crazy, because when i actualy was, i was the first to admit it, but as someone that knows, being med guinea pig till they find the right combo is horrible! prozac made me very very violent, nardill made me pass out, so one thing i know, if meds arent working, you need to tell the doc to change them or change your doc..
may i ask you something and please, this is in no way meant to be bad, do you think you need meds for a mental health reason? maybe the morgies is a side affect.please, no offense ay all was mean there.. have you tried getting off all meds for a while? maybe cleaning it out of your system may help...
im not a doc, im just somebody that went thru it...
the one thing people dont realize is that mental health meds are the easiest, fastst way to get on disability...people get offended if they are given pyc meds, but if you go apply for SSI, you'll probably get it..THEN stop taking the pills, if you dont need them.. but please, make sure you really dont need them before you stop taking them, coming off meds can screw you up, weight gain, depression super bad, suicide/homicidle thouths...
but seriously, go apply for disability while your on them. you'll have apply twice, ssi always turns people down the first time, BUT you'll get a huge back check the second time you apply.. were talking up $5000...plus $800 a month, section8 housing/rent...no kidding..

dont get dicoraged by it, use it to your benifit...