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Morgellons-Morgellons Disease

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Old April 12th, 2010, 11:45 AM
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Old April 12th, 2010, 12:17 PM
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Quote:
Originally Posted by skylark99 View Post
As you know, by referral of my GP, I had an appt at the derm clinic on March 24th here in the town where I live. The derm dept from Lxxxxxxxx Hospital comes up here twice a month.
At that appointment, I was seen by a doctor C.
She and her assistant/trainee took skin samples from my lower neck and upper back.
Last Friday April 9th, I tried to chase down the lab results.
I called the hospital here. The technician looked on the computer; no skin scrapings were ever sent to the lab.
I called Lxxxxxxxx Hospital, the base of the dermatology department, next.
The computer was down and the derm dept secretary told me to call back today,
I called Lxxxxxxxx Hospital derm dept today.
I was told that Dr C. never submitted the skin scrapings to any lab at all.
I was also told that her superior, a Professor H. -head of the dermatology dept at Lxxxxxxxx Hospital- has written Dr C a letter. The letter has not yet been sent.
The letter states "there would be nothing to gain by submitting this sample to a lab for examination."

I have written to both the doctor and the professor and requested a written response of explanation for their actions. I will post further on this thread when I have any responses. Typically, it is not unusual for such inquiries to take a minimum of 6 weeks.

Here in the UK social medicine is paid for by the public purse.
This is not only inexcusably poor medical care as I have been trying to find out for 9 months why I am ill, it is also a wasteful use of public monies.

I could complain to the regional Care Trust in charge of this hospital dermatology department, but doubt that any investigation would lead to more than a response that would state: "proper procedures were followed and decisions made at a higher level were deemed to be appropriate."


Skylark,

It's frustrating reading these kinds of stories. Sorry you have to go to this length to get proper care. Take it to the extent you need and define what appropriate care and action means to you as a patient and demand it. This written response "there would be nothing to gain by submitting this sample to a lab for examination" is vague and unacceptable.

I hope this isn't a taste of what obama-care will be like. Decisions left to a "higher power". That power having no clue and could never have because they are not the ones who ask you to say aaaaahhhh

Livewell
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Old April 12th, 2010, 03:28 PM
fracty is grief stricken - and FURIOUS with the doctors who said this illness is imagined!
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It's sad, but this seems to be the pattern.

These doctors are working out of their area of training when they "diagnose" us as delusional. YEt we never get the medical tests to figure out what this is. Just because they do not know off of the top of their heads, and they have never seen a physical illness like this, they decide it means, the illness is "wrong" and their limited knowledge is "right."

I used to work with mental health patients. If one of my patients had received this type of treatment from a gm medical practitioner I would have had a billion ppl coming down on him/her if necessary and get my person a proper exam. Even mentally ill ppl can have physical illnesses as well - not that we are mentally ill, but even if wer were, the lack of care/testing we receive is atrocious.
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Old April 12th, 2010, 04:12 PM
Sadsack is Praying for a Miracle
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Quote:
Originally Posted by livewell View Post
Skylark,

It's frustrating reading these kinds of stories. Sorry you have to go to this length to get proper care. Take it to the extent you need and define what appropriate care and action means to you as a patient and demand it. This written response "there would be nothing to gain by submitting this sample to a lab for examination" is vague and unacceptable.

I hope this isn't a taste of what obama-care will be like. Decisions left to a "higher power". That power having no clue and could never have because they are not the ones who ask you to say aaaaahhhh

Livewell
Livewell -

This has been happening in this country forever. Doctors are under tremendous pressure from the insurance companies to minimize the number of tests they do. Some of this is justified; much of it is not.

SS
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Old April 12th, 2010, 11:02 PM
Baraka Obam is FEARLESS LEADER
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Default SKylark

You know, when somthing like this happens i will go all the way to the top to ask, who, what, where, when, when I am done, there is usually a price to pay. Legislators are my last stop, words along the way are things like, is your job an appointment or have you been hired. That question gets them thinking about all answers. Think about all these beauro rats. A government agency sent me a letter that they were going to do this and that to me, they were wrong, I was going to do this and that to them. The end of the day came and all was well and I did not have to call them again, they were calling me to tell me all was well and exactly how they had failed me.

I would start with the head of dermatology, a specimine does not need to be investigated!!!!! I would record his answer, I would go to the hospitol. There is one problem and I know what it is, they were told the word morgellons, thus your crazy and digging yourself, they were told worms and other stuff and they see nothing. They have you down as crazy, what they are not mind doctors, how can they judge a crazy person, HMMMMMMMMMM.

You know still people are going into doctors to FORCE recongnition of this, DOCTORS ARE NOT SMART PEOPLE, the doctors are at best, most doctors, slightly educated, not smart. They are like part changers at auto repair shops, they can change a part, but can not even do that well as they do not read the repair manuels or use proper straps clamps, torque wrenches.

What the doctors lack here is proper procedure. YOU NEED TO FIND OUT WHAT PROPER PROCEEDURE IS IN THIS CASE, not sending in a sample of your body that they CUT OFF YOU, what do they do cut you up and throw your flesh in the garbage. Start calling, call the hospital, bring a microscope with you and ask if they have ever seen one, SHOW THEM MY PICTURES ON THIS SITE.
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Old April 13th, 2010, 07:57 AM
Bee Bee is offline
Bee is still alive
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Ya'll ever consider maybe they Do believe you and they just don't want you to come back. Parasites are the #1 fear of mankind.
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Old April 13th, 2010, 10:29 AM
tcmgpt13 is "status viatoris."
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Afraid this probably is a taste of Obamacare with a new spin in the US. In the US some of the folks in that admin admit that the elderly will be given pain pills instead of care. That statement came from the top man in that admin in a town hall meeting. So. How many over 65 will feel that it is safe to go to a doctor or hospital? Especially a hospital...

Quote:
Originally Posted by livewell View Post
Skylark,

It's frustrating reading these kinds of stories. Sorry you have to go to this length to get proper care. Take it to the extent you need and define what appropriate care and action means to you as a patient and demand it. This written response "there would be nothing to gain by submitting this sample to a lab for examination" is vague and unacceptable.

I hope this isn't a taste of what obama-care will be like. Decisions left to a "higher power". That power having no clue and could never have because they are not the ones who ask you to say aaaaahhhh

Livewell
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Old April 13th, 2010, 12:33 PM
livewell has no status.
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Default Quality of Care

Quote:
Originally Posted by Sadsack View Post
Livewell -

This has been happening in this country forever. Doctors are under tremendous pressure from the insurance companies to minimize the number of tests they do. Some of this is justified; much of it is not.

SS
Yes ma'am, Dr's are under extreme pressure and not only by insurance companies. Agree with certain justifications as well. I have been watching discussions of the health care reform bill as closely as humanly possible. I watched live stream, the last day all day until the vote was made and the bill passed at that level. You would be amazed (or not) how OFF most of the media was reporting on the heath care reform bill. Talk about brain washing.

All I can say is be aware, be informed, and state your case realistically when seeking care. It should be approached like a contract for care with all involved on the same pages. If not you will be let down, you will be disappointed.

Live well
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Old April 13th, 2010, 12:40 PM
livewell has no status.
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Quote:
Originally Posted by tcmgpt13 View Post
Afraid this probably is a taste of Obamacare with a new spin in the US. In the US some of the folks in that admin admit that the elderly will be given pain pills instead of care. That statement came from the top man in that admin in a town hall meeting. So. How many over 65 will feel that it is safe to go to a doctor or hospital? Especially a hospital...
TCM

Yep, most of us will experience a new 'Elder Care' one day. I will be prepared.
Make it to those town hall meetings if possible and become a part of the process. Let's see what we can find detailing most of the bill or parts of it.



livewell
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Old April 14th, 2010, 05:21 AM
cynical is Is Exhausted!
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I'm Kind of confused. Why do you call yourself Baraka Obam? Just a coincidence? sincerely I wonder? No judging just wondering.
Quote:
Originally Posted by Baraka Obam View Post
You know, when somthing like this happens i will go all the way to the top to ask, who, what, where, when, when I am done, there is usually a price to pay. Legislators are my last stop, words along the way are things like, is your job an appointment or have you been hired. That question gets them thinking about all answers. Think about all these beauro rats. A government agency sent me a letter that they were going to do this and that to me, they were wrong, I was going to do this and that to them. The end of the day came and all was well and I did not have to call them again, they were calling me to tell me all was well and exactly how they had failed me.

I would start with the head of dermatology, a specimine does not need to be investigated!!!!! I would record his answer, I would go to the hospitol. There is one problem and I know what it is, they were told the word morgellons, thus your crazy and digging yourself, they were told worms and other stuff and they see nothing. They have you down as crazy, what they are not mind doctors, how can they judge a crazy person, HMMMMMMMMMM.

You know still people are going into doctors to FORCE recongnition of this, DOCTORS ARE NOT SMART PEOPLE, the doctors are at best, most doctors, slightly educated, not smart. They are like part changers at auto repair shops, they can change a part, but can not even do that well as they do not read the repair manuels or use proper straps clamps, torque wrenches.

What the doctors lack here is proper procedure. YOU NEED TO FIND OUT WHAT PROPER PROCEEDURE IS IN THIS CASE, not sending in a sample of your body that they CUT OFF YOU, what do they do cut you up and throw your flesh in the garbage. Start calling, call the hospital, bring a microscope with you and ask if they have ever seen one, SHOW THEM MY PICTURES ON THIS SITE.
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