Sad Day Today

[belle9]

My dermatologist was helping me and treating me. He said he KNEW that something was biting me and he has even referred me to a research physician while he is treating me. Today, he would not listen to anything I had to say and wrote DP on my chart and insisted on a prescription for medication for it. I felt so deeply betrayed. It was all I could do not to cry all day. If I hadn't been at school with kids around, I would have. I am also angry. I want a Morgellon's diagnosis from a physician. It is apparently medical suicide to even hint that the fibers are real and came from me. He started acting very weird when he saw slides with the fibers on them. I am so very depressed. Thanks for reading this.

[Bee]

Just remember, What's true today will not be true tomorrow.
One day the non morgie believers Will Believe.

The average dr isn't going to be able to help any of us it looks like.

[Katinka]

So sorry you've been treated that way, belle!...I'm thinking, possibly the docs have been told to react this way when somebody shows up claiming to have Morgellons disease?....I've read on a German site, that psych drugs have seemingly positive effects on physical symptoms too...It looks like they are trying to treat the symptoms, well knowing it's real, but are told to not admit it!..It could also explain, why your doc agreed with doing blood tests for Lyme's, like you said in another post, if I recall right, because he's actually trying to help you, but needs to find a REAL cause of your illness.

Don't cry darlin'...
Kat

[belle9]

Katinka,
I don't know what I'd do if it weren't for you guys and my husband. I also have a son with Down syndrome. That's why I know about advocacy. Right now, y'all are my lifeline. BTW the plural of y'all is all y'all We really use that phrase and it is always plural by itself. LOL

Originally Posted by Katinka

So sorry you've been treated that way, belle!...I'm thinking, possibly the docs are been told to react this way when somebody shows up claiming to have Morgellons disease?....I've read on a German site, that psych drugs have seemingly positive effects on physical symptoms too...It looks like they are trying to treat the symptoms, well knowing it's real, but are told to not admit it!..It could also explain, why your doc agreed with doing blood tests for Lyme's, like you said in another post, if I recall right, because he's actually trying to help you, but needs to find a REAL cause of your illness.

Don't cry darlin'...
Kat

[ChatCat]

Hi Belle,

That is really bizarre. What would cause your doctor to be so skitzo? He is the one who needs psyco drugs.

I had a flp side experience. I tried to go to an acupunturist. I called him on the phone and made the appointment and I also asked him if he knew about Morg and he said no.
I just wanted him to help open the pathways of detoxification.
Well I showed up for the appt. and he refused to help me. He was freaked at the info about Morg. on internet. I told him that I believed that Morg is not contagious after speaking with Dr. Staninger and he said that he would call her.
He then politely escorted me out the door as all of his co-workers in his office look at me with fear in their eyes. They all knew that I had Morg and were also freaked about it.
I don't even have any lesions and he would not touch me.
He believes in Morg but is too afraid to help others. While I understand his fear, he could have at least followed through and called Dr. S which he never did.
Anyway, sorry to ramble, I guess I had to vent too.

I understand how you feel. So sorry that this happened. It makes me mad.

We are in this war together and we will win!!
cc

PS. the good news is no one in my fam has gotten Morg. Dr. S has been helping people for years and no one in her office has gotten it either.

[Baraka Obam]

The mear mention of this disease would send ANYONE running, would you want to risk your life and the life of your darlings on their guarantee or another doctors guarantee that does not even KNOW what this is!!! Say what they will there is no proof yet and I KNOW this can be spread, not so easily but it can, this is a fact. Then when it is spread do ALL the symptoms and symbiotic diseases go with it?????? Well, don't they think of this, are all the symptoms from one disease??????.

The first thing my sister did was look on line, she saw, worms coming out of the skin, stabbing fibers, bugs biting, lesions, you name it, diagnosis of CRAZY, well, what do you think she wanted to hug me. With womens fear of the environment and little black things, NO, from that point on I was a leper, a threat to her young ones and her. i don't think she worried about the husband,LOL. He has it anyway and if he has it she has it. He has spiny bone, bone disintegrations, and what I told them that was NEXT, carpel tunnel. They said I did not know what I was talking about, two months later bang, carpel tunnel. I don't wish things on people, its just I am getting better at predictions going on my experience and MANY others.

I do not want to bust any bubbles here but what is a diagnosis of morgellons, what is the full monty, could you have morgellons with just acne that will not go away, YES, could it be maybe your THYROID has gone out of wack, YES, can it be, little spots on your skin, YES, these and many more followed me Thur this life from the time I was 18 years old.

I would say, maybe a skin scraping for fibers, or fins a cut thats healing and see if the scab has fibers in it.

Then again is it the fibers that make this a positive diagnosis. Mine are there but are they small.

If I was to take a sample from a spot and put it on my microscope i will see limited amount of this stuff, BUT if I come back later there seems to have grown fibers, does the heat from my lamp do this, GROW THEM.

What I need is a time elapsed camera, I think that is what they call it and see what they spring out of. I wish there were some other people that would try some microscopeing instead of sitting on their hands.

I am not a scientist but found a few odd things, mucus in the colon with worm like things in it, a live and moving microscopic worm in the urine, which is probably why my kidneys and others are acting up, and the fast growing morphing black muck in the blood. maybe that is a part of the body's system OR NOT, maybe one of the body's systems has evolved beyond what the rest of us has.

Who knows, but I do know this, do not tell anyone of your illness as you try to find ways to heal, it is not in your best interest and as you are the one that is ill, you are the one that needs help, sooner than later.

Do not get yourself diagnosed as CRAZY it hurts your credibility, until they find out differently you will be nuts. The fact is even after they find out you were correct you will still be nuts, as a man that went to school for disease of the body is now playing DOCTOR OF THE MIND.

I say get copy's of all your records, DO IT NOW, do not say why and then SUE the doctor when it comes clear that you are right and he is , whats the word I'm looking for here, hmmm, grut, yeas, ok, WRONG. He is also not a DOCTOR OF THE MIND so he is making a diagnosis of something not in his field.

[jonsi]

Hi belle9,

I know exactly how you feel

I was devastated each time I was diagnosed with DOP (four times by MDs).

I found a homeopathicic/natural Doctor that helped me & my young daughter. We are healthy now, no signs of "M" except for my small lesions, slugs in menses & (ugh). But no biting, joint pain, anxiety....

I'm glad you have this site & new friends to relate to. You are going to get better.

Ya'll hang in there! (I grew up in Texas )

In the white light,
~jonsi

[cynical]

Sorry Belle,

I had a similar thing happen when I went to an allergist when visiting my sister in Georgia. My sister spoke up asking if they could run a lyme test and tried to explain what I could not because I was in near tears. The office was a joke I had reactions two different ways to pets yet they only said one which made no sense. She also seemed disinterested in doing anymore testing. That is when I decided I did not want to go to anyone else unless they have acknowledged morgellons or lyme as real. I'm sorry you had to go thru that. I can't afford the doctors that believe right now that is what really sucks!!!

Originally Posted by ChatCat

Hi Belle,

That is really bizarre. What would cause your doctor to be so skitzo? He is the one who needs psyco drugs.

I had a flp side experience. I tried to go to an acupunturist. I called him on the phone and made the appointment and I also asked him if he knew about Morg and he said no.
I just wanted him to help open the pathways of detoxification.
Well I showed up for the appt. and he refused to help me. He was freaked at the info about Morg. on internet. I told him that I believed that Morg is not contagious after speaking with Dr. Staninger and he said that he would call her.
He then politely escorted me out the door as all of his co-workers in his office look at me with fear in their eyes. They all knew that I had Morg and were also freaked about it.
I don't even have any lesions and he would not touch me.
He believes in Morg but is too afraid to help others. While I understand his fear, he could have at least followed through and called Dr. S which he never did.
Anyway, sorry to ramble, I guess I had to vent too.

I understand how you feel. So sorry that this happened. It makes me mad.

We are in this war together and we will win!!
cc

PS. the good news is no one in my fam has gotten Morg. Dr. S has been helping people for years and no one in her office has gotten it either.

[Bee]

I would just like to mention, I Don't think I got this M from anyone. I have been pretty much a recluse for years. Not completly, but I'm not the huggie type either. I think it's enviromental or CLM from having parasites for many many years.

[tcmgpt13]

Hi Belle,

I posted about some places to find alternative care in Savannah. I don't know if you have seen it, so will post the link just in case that might give you other places to find other types of practitioners to care about you and your health.

Finding A Doctor To Help (permalink 11)

I am sorry you have had some doctors treat you in a negative way. It does not seem fair, but unfortunately there are a lot of doctors with narrow minds.

I have been lucky in the doctor's I have seen. Some of them have been rated by patients on the internet which helped me make decisions to see them. Just searching under a doctor's name/location often (not always) brings up patient reviews. Sometimes it is enough to get a feeling about the doctor. This has worked for me more than once. Of course the ideal situation would be if you heard from other local people about a doctor and his attitude (open mindedness being one).

I have never had a Morg diagnosis and I never mention it, but my most recent doctor mentioned it himself. One doctor treated me for some infections and it helped. Now I am going to one about digestive issues (he is treating in an alternative way, happily). I try to get what help I can from the doctors and it has helped me improve over time. TCM herbs have helped me too, but I understand what ChatCat means about some acupuncturists being reluctant to treat them. I know at least one former friend acupuncturist did that to me (I know quite a few practitioners from some time spent informally studying TCM). So some will have that reaction about symptoms. I did not say Morg, just parasites.

I try to look at it any rejections as separating the wheat from the chaff. Btw the rejections have come from me when I notice a doctor is not that concerned about me as a patient. I had at least two who seemed too conventional and did not even try to look into my symptoms at the time. I have found some really good care along the way and learned who was truly my friend as far as the acupuncture situation. One friend treated me continuously with TCM herbs for over a year at a reduced cost for my Morg symptoms. There are good people out there, the trick is not giving up and finding them.

I know that eventually you will find someone. Meanwhile I am sorry for you most recent disappointment and hope things look brighter today.