Sad Day Today

[carla]

Originally Posted by belle9

My dermatologist was helping me and treating me. He said he KNEW that something was biting me and he has even referred me to a research physician while he is treating me. Today, he would not listen to anything I had to say and wrote DP on my chart and insisted on a prescription for medication for it. I felt so deeply betrayed. It was all I could do not to cry all day. If I hadn't been at school with kids around, I would have. I am also angry. I want a Morgellon's diagnosis from a physician. It is apparently medical suicide to even hint that the fibers are real and came from me. He started acting very weird when he saw slides with the fibers on them. I am so very depressed. Thanks for reading this.

Exactly the same thing happened to me Belle. The Doctor treating me said it was clear I was not delusion,and something was wrong.
Then,out of the blue he diagnosed me DOP.
As he was telling me this I saw several big fibers land on his bald patch.

[posey]

btw belle9, I find it highly suspicious of your Drs. actions. Almost as if at first he di not know it was a "hush-hush" disease. Hush Hush by whom is the BIG question of the days.

I have "M" as a diagnosis on 2 lab orders, by 2 different Drs.

My PCP did this. My D.O. who has been treating me since 2001 for chronic pain has also. He is a TRUE believer of "M". He knows it is a real disease. He is researching during what time he has and after ordering lab work for Mycoplasma and Chlamydia Pneumonia which had results of elevated titres, is now treating me with the protocal for it.

The problem is there is not yet a test to show if the titres are elevated due to present or past infection. Due to this, D.O. let me make my own decision and I chose to do it. Where I live they do not even do these tests. They had to send my blood to Mayo Clinic for the actual testing.

There are bugs that re really smart, i.e. Lyme. They know enough to change their life form such as from a sphirochete to cyst form once they detect antibiotic. All antibiotics are not alike as far as what they treat. Lyme is a cousin of Syphillis.

I have began with doxycyclene a few weeks ago and next time I see Dr. we will ad anopther antibiotic while I am staying on the doxycyclene.

Off hand I don't have the name of the Univ. where he got the protocol, but when I find it I will post it.

I almost lost this once so am not going to proof it-please excuse typos

[belle9]

My five year old granddaughter has fibers and lesions. It is breaking my heart to see it. I keep wondering how Billy Koch's (baseball player) family all contracted it. My doctor touched me several times (supposedly with compassion) just to show that he was not afraid and that I didn't have morgs, just a screw loose.

Originally Posted by ChatCat

Hi Belle,

That is really bizarre. What would cause your doctor to be so skitzo? He is the one who needs psyco drugs.

I had a flp side experience. I tried to go to an acupunturist. I called him on the phone and made the appointment and I also asked him if he knew about Morg and he said no.
I just wanted him to help open the pathways of detoxification.
Well I showed up for the appt. and he refused to help me. He was freaked at the info about Morg. on internet. I told him that I believed that Morg is not contagious after speaking with Dr. Staninger and he said that he would call her.
He then politely escorted me out the door as all of his co-workers in his office look at me with fear in their eyes. They all knew that I had Morg and were also freaked about it.
I don't even have any lesions and he would not touch me.
He believes in Morg but is too afraid to help others. While I understand his fear, he could have at least followed through and called Dr. S which he never did.
Anyway, sorry to ramble, I guess I had to vent too.

I understand how you feel. So sorry that this happened. It makes me mad.

We are in this war together and we will win!!
cc

PS. the good news is no one in my fam has gotten Morg. Dr. S has been helping people for years and no one in her office has gotten it either.

[belle9]

I wrote him a letter (for some reason I am more erudite when writing these days) and attached it with info from Oklahoma State to an EKG he ordered. A dermatologist can't treat this anyway, especially not with how fast the brain, orthopedic, and GI symptoms are coming on. Georgia is way behind, but at least they've done a study. I read some research that says that they have found DNA evidence of agrobacterium in the fibers. I wish I knew where I have to travel to get care.

Originally Posted by posey

btw belle9, I find it highly suspicious of your Drs. actions. Almost as if at first he di not know it was a "hush-hush" disease. Hush Hush by whom is the BIG question of the days.

I have "M" as a diagnosis on 2 lab orders, by 2 different Drs.

My PCP did this. My D.O. who has been treating me since 2001 for chronic pain has also. He is a TRUE believer of "M". He knows it is a real disease. He is researching during what time he has and after ordering lab work for Mycoplasma and Chlamydia Pneumonia which had results of elevated titres, is now treating me with the protocal for it.

The problem is there is not yet a test to show if the titres are elevated due to present or past infection. Due to this, D.O. let me make my own decision and I chose to do it. Where I live they do not even do these tests. They had to send my blood to Mayo Clinic for the actual testing.

There are bugs that re really smart, i.e. Lyme. They know enough to change their life form such as from a sphirochete to cyst form once they detect antibiotic. All antibiotics are not alike as far as what they treat. Lyme is a cousin of Syphillis.

I have began with doxycyclene a few weeks ago and next time I see Dr. we will ad anopther antibiotic while I am staying on the doxycyclene.

Off hand I don't have the name of the Univ. where he got the protocol, but when I find it I will post it.

I almost lost this once so am not going to proof it-please excuse typos

[Enviro Girl]

Hi Belle!

I posted back to you cheer you up to, give you my personal experience w/hope. I had only been to 4-5 crappy docs before this, though.

I haven't given Morgellon's to anyone I know. I posted back to you today on:

For Sue Laws

Just in case you didn't see it and you still want more LOVE today than already on here



Hang in there, we're gettin' through this! I think The Morgie Situation right now is better than ever!

Wishing global Butterflies!,

[belle9]

Baraka,
I have my military record but I have to have them request everything from the two doctors (dermatologists) who labeled me DP. I did not even mention morgellons to the first one. She just could not treat me (not get it to go away) so I must be nuts.

[Enviro Girl]

Belle, I put something to this effect on For Sue: I would go MIB/Medical Information Bureau, we need to get the BEST master copy, with ALL their dirty little notes. Pls. let us know costs to post if you do!

[belle9]

I have had some good women doctors but most of them lacked compassion. I wonder if it is because it is so much tougher for women in medical school (or it was a few decades ago) and they lost what feeling they had. Of course, people who go into dermatology probably don't want anything that requires a lot of their time. I sure one of my docs would much rather be lengthening Brook Shield's eyelashes

Originally Posted by cynical

Sorry Belle,

I had a similar thing happen when I went to an allergist when visiting my sister in Georgia. My sister spoke up asking if they could run a lyme test and tried to explain what I could not because I was in near tears. The office was a joke I had reactions two different ways to pets yet they only said one which made no sense. She also seemed disinterested in doing anymore testing. That is when I decided I did not want to go to anyone else unless they have acknowledged morgellons or lyme as real. I'm sorry you had to go thru that. I can't afford the doctors that believe right now that is what really sucks!!!

[Doc Holliday]

Originally Posted by belle9

My dermatologist was helping me and treating me. He said he KNEW that something was biting me and he has even referred me to a research physician while he is treating me. Today, he would not listen to anything I had to say and wrote DP on my chart and insisted on a prescription for medication for it. I felt so deeply betrayed. It was all I could do not to cry all day. If I hadn't been at school with kids around, I would have. I am also angry. I want a Morgellon's diagnosis from a physician. It is apparently medical suicide to even hint that the fibers are real and came from me. He started acting very weird when he saw slides with the fibers on them. I am so very depressed. Thanks for reading this.

>>>Sorry to hear that belle!.. it bites that Doctor's are still treating folk's like that ... most of us have been through the same thing, ..I went to so many derm. Doc.'s and I really wanted to slap a few, ...they treat you at a distance ...like about 3 to 4 feet,... I mentioned the fist symptoms,.... this one guy dictated to me the rest of my symptom's, and wouldn't listen to me,..said I itch a lot, I felt this or that,...this jerk said I was causing the lesions,.. what a joke!! ...then he said, he sees it all the time, what does that tell ya!!.. he never check my skin, ..stayed 4 feet away... I was scoffed at, treated as a pest, laughed at, treated with little or no respect,....very strange. belle!! what ya need to understand is ...this Illness is not sanctioned by the CDC,...or is not protocol so--- if Doctor's treat you for an unknown disease,..they can be disciplined or fired ---weird but true...... Hi Bee!! I think that parasites can infect the land in many ways,....we in the U.S.. U.K.. and other country's, take in a lot of immigrant's from 3rd world Nations..... for years!!.....every time an area is flooded the land gets polluted from fices,...... not only from migrating people, but animals as well,.. a kinda of sewage soup ..that can pollute the land with parasite's ....the other problem,. urban sprawl -- woodlands are going,... most towns have taking over animal habitats, so now, were all living closer. 15 ---20 years ago,... to hear of a coyote,.. Moose..or Bear, and so on would be unheard of,...to be found in a town near the city...now it's every year, .I'm talking about 8-5 miles from a major city!!....such as Boston. oops ran a muck. ....... Doc P.S. I'm not doing well --so this will have to do for now----t y Doc