For Sue Laws

[Morgan]

Dear Fellow MDR Supporters,

I woke up this morning finally ready to put pen to paper regarding how pissed off I am regarding the lack of communication from the CDC study.

If I do not fight, I am nothing. Worse, I am a quiet nothing.

Sue Laws had a fighting spirit and died fighting for this cause in public. She didn't hide or keep silent. I feel I owe her this much. Below is a letter I've just written my Senator's and Representatives and enclosed a copy of Sue Law's Obituary and her January 20, 2008 interview with the Washington Post.

Thanks again Sue.
____________
Vernon Ehlers
2182 Rayburn House Office Building
Washington, DC 20515

Dear Representative Vernon Ehlers,


I am desperately seeking your assistance for the release of information from the CDC regarding a taxpayer funded, medical study they have completed. This study involves a condition referred to as Morgellons Syndrome or Unexplained Dermopathy. This study began in January 2008
and was allegedly concluded on September 24, 2009 with many afflicted participants behind closed doors through Kaiser Permanente of California.

The only information which was released was a little sheet of underlining what they plan to do but nothing that is of any use to the medical community or patients. This is unacceptable in my opinion. After all of the time, money and waiting we need more immediate information and action.

The following is what was released to the public from the CDC on November 4, 2009. We need more information now. This is an unacceptable conclusion for those that are suffering. Please help us with the release of more concise, specific, usable information which can help us and our physicians understand and treat this condition so we can continue on with our lives with some semblance of normalcy.

Preliminary Report on Progress of External Peer Review of
CDC’s Unexplained Dermopathy Project
To the CCID Board of Scientific Counselors
November 4, 2009

In January 2008, CDC launched an epidemiologic investigation of an enexplained skin condition which some refer to as “Morgellons.” The primary goals of the investigation are to help us learn more about who may be affected with this condition and the symptoms they experience and to generate hypotheses about factors that may contribute to it. Data collection has been completed and analysis is ongoing. This investigation was conducted out of the National Center for Zoonotic, Vector-borne, and Enteric Diseases’ (NCZVED) Division of Parasitic Diseases (DPD), with input from a cross-agency, multidisciplinary workgroup. On September 24, 2009, DPD convened an external review panel to examine study activities to date and provide advice on future activities. DPD outlined several questions for the panel to address:

1. Have the project’s goals and priorities been addressed?
2. What are the study’s strengths?
3. What are the study’s limitations?
4. Are there gaps of concern or need for additional study?
5 What findings can be communicated to the public, medical community, and
stakeholder communiy?

6. What is the public health impact of this study?
7. What should the priorities be in the future?

The panel has not yet released a report of its findings to the CDC. When we receive a report from the panel, we will share it with members of the BSC, along with the program’s response to the panel’s findings and recommendations. DPD and NCZVED leadership will meet with CDC leadership to discuss options for future program activities to address any issues raided by the panel, including considerations for potential organizational home for further research.

The questions should really be addressed as to WHEN not WHAT.

I’ve enclosed a response you sent me from a letter written on this subject on June 27, 2007. Please help expedite the release of these results to the public and medical community. This is taking far too long for suffering families and the physicans who are unable to properly treat them.

Thank you,
____________________

Morgan

[Enviro Girl]

Hey Morgan!

I'm looking for good people to help The Fight with, always...That was a great letter you sent - thank you! I hope it yields positive response!

If Sue's family hasn't sought legal action/if they did and didn't win, I would suggest they contact these attorneys to see what they can do/start up:

U.s.: Been Unable To Work Since Morgellon's/want $?!!

For now, it sounds like (even potential retro) SSDI, for starters - but there are restrictions, we need to broaden the scope of what that precedent can do. We need more and more and more simultaneous legal action right now, in order to stop some of the new contractions of Morgellon's.

We have to align to help protect others/children from going through the same nightmare that we all did.

We need as many real names and real stats/stories on official documentation as we can get, in all ways.

We really should organize 'A Day' - others in their countries should, too.

Right Now is a really important time, we can't let up, we need to kick it up a notch and I think we'll see some MAJOR activity from the U.S. Centers for Disease Cover Up.

Morgan: An email was sent to the CDC 11/24/09 alleging pesticides containing agrobacterium are (partly) to blame for the spread of Morgellon's.

There was an unofficial 'update' from the CDC via the EPA Agrobacterium Pesticide 'Fact' Sheets Updating on 11/25/09. Within 24 hrs. Their goose is cooked.

(and I'm grinning from ear to ear - turning the oven up to BROIL.)

I'm better and now that I know others can be OK (that was Priority #1 - check.)...

Now, I can breathe a bit and move on to the rest of what WILL be done...

Morgan, I'm not walking away and leaving this ugly situation behind until I see:

1. Pesticide Mfg/Distributor Litigation - IMMEDIATE BAN ON THESE 2-3 PESTICIDES AND THE TECHNOLOGY TO PERPETUATE THEIR GM INFECTIONS - No New Morgies Made/Can't GM Plague Spread if you're Flat Broke...
2. Congressional Hearing - CDC: Why no action on Morgellon's since at least 2002?! Where ya been? Cuz I saw you stalk a honeymooner on a plane for a strain of TB and you're doing studies about which states are the freaking happiest over the last 8+ years while thousands begged and screamed to you for help w/Morgellon's and you won't even answer an email...(but they blatantly WILL quickly share those emails inter-agency in order to go hide relevant alleged evidence - while they still ingore us, publicly? NO. This is why I have to make noise. That's malarky.)
Oh, Try Again, Cooked Geese. They created evidence, 11/25/09. We ALL have that evidence now. It's OUT.
The CDC is corrupt and malignant, they all need Pink Slips. CAP = Solution. Citizen Appointed Patrol (every single agency, Morgellon's and no new ITs, this never happens again)
3. DOP Misdiagnoses/Wrongful Death/Family Strife Medical Malpractice: Bad Docs, Time to Run - Next time, they'll all think twice on the Matchbox Theory and making jokes about US and our ziplocs on blogs and that we met each other on the web and faked so we'd all have the same symptoms, that we put similar holes in our bodies based on pictures of others lesions on the web, Munchausen By Proxy...(DOP was part of the Bad Guys' Morgellon's Plot)
You sue those docs for DOP/a bunch of ppl do, each in the towns the same docs did this just to a few of us/their malpractice insurance goes through the roof - they can't afford to hurt people w/their ignorance and corrupted mis-training, they'll learn to seek training that isn't paid for by Big Pharma, ASAP or they won't be able to afford to practice in within months, end of story.
(Special Interests like Big Pharma funding and corrupting AMA training - that junk needs to be illegal.)

The situation is HOT right now, Morgan. I'm excited!

The CDC got a copy of the case retro SSDI ruling (the details), they know people like me (and hopefully you) and many, many others fighting for Morgies that are NOT going to be silenced. This is OUR time. I can feel it...

I think seeing this 5 page case ruling would be soothing for Sue's family...

I believe we should ALL be including that 5 page ruling and the attorney hotline set up, showing that ruling/ongoing legal activity in ALL our doctor battles/re-education, to family and friends and employers that didn't understand us and to the CDC and to our Politicians and the Press. Simultaneously.

They all need to SEE. It's Dragon's case, but it's all of OUR stories

It's landmark and she just gave us a TON of hope for the whole situation!

FOLKS: WE ALL NEED TO SPAM AND POST THAT 5-PAGE RULING AND THE ATTORNEY ONGOING ACTIVITY/HOTLINE, EVERYWHERE - THAT'LL GET SOME ATTENTION. I HOPE WE CAN ALL START INCLUDING THAT IN ALL OUR CORRESPONDENCE. IT SHOULD HELP OUR BATTLE SO MUCH!

I'm doing it, it doesn't even apply to me - we need official awareness/factual #'s, since they won't keep 'official' track/are still trying to deny our #'s.

I promise you, Morgan - They're NOT going to get away w/this. If you know Sue's family, tell them I'm so sorry this all happened. I will never walk away until we have justice and others are protected.

I will read the writings on here & elsewhere about Sue's story and add her and her family of to the list of victims I pray for and I can never forget, that I will ALWAYS keep fighting for. These stories give me fuel and strength to keep going to bat for us, every day, for as long as it takes.

We're gonna make this better. We have the means. The tables have turned on the Bad Guys and we are now winning this war!

Please tell Sue's family I was a volunteer cleaning up litter and I contracted Morgellon's in Pittsburgh, when I backed into a tree, 03/25/06.

Please tell the Laws: Protection from and Justice for Morgellon's is my new life-long volunteer project. I will never sell out or back down, I won't stop until IT does and I align daily with more that feel the same - There's a LOT of people fighting for us now

Wishing Global Butterflies!,

[belle9]

At the moment I am still able to work. I teach school and if I were to come out and tell everyone I have this, I will lose my job. I am making the most money in our home right now and having a house depends on me for as long as I am able. I believe the original opportunistic parasite came from a student. I have no idea where the thing with the fibers and ALL of the symptoms on the Research Foundation site. I am going to ask my husband to speak with one our local Congressmen here in Savannah if he will. I am really down about this because I have been an advocate for my and my family's issues all my life. If I can get one doctor to diagnose me with Morgellon's however, I plan to pursue legal action against all the doctors who labeled me delusional and to heck with the consequences. I had really bad news today. My doctor who was helping me and even finding a research doctor to help me wrote DP on my chart today and insisted on prescribing a medication for it. He did humor me and order bloodwork for Lyme's disease. I will do whatever I can to help others.

Originally Posted by Enviro Girl

Hey Morgan!

I'm looking for good people to help The Fight with, always...That was a great letter you sent - thank you! I hope it yields positive response!

If Sue's family hasn't sought legal action/if they did and didn't win, I would suggest they contact these attorneys to see what they can do/start up:

U.s.: Been Unable To Work Since Morgellon's/want $?!!

For now, it sounds like (even potential retro) SSDI, for starters - but there are restrictions, we need to broaden the scope of what that precedent can do. We need more and more and more simultaneous legal action right now, in order to stop some of the new contractions of Morgellon's.

We have to align to help protect others/children from going through the same nightmare that we all did.

We need as many real names and real stats/stories on official documentation as we can get, in all ways.

We really should organize 'A Day' - others in their countries should, too.

Right Now is a really important time, we can't let up, we need to kick it up a notch and I think we'll see some MAJOR activity from the U.S. Centers for Disease Cover Up.

Morgan: An email was sent to the CDC 11/24/09 alleging pesticides containing agrobacterium are (partly) to blame for the spread of Morgellon's.

There was an unofficial 'update' from the CDC via the EPA Agrobacterium Pesticide 'Fact' Sheets Updating on 11/25/09. Within 24 hrs. Their goose is cooked.

(and I'm grinning from ear to ear - turning the oven up to BROIL.)

I'm better and now that I know others can be OK (that was Priority #1 - check.)...

Now, I can breathe a bit and move on to the rest of what WILL be done...

Morgan, I'm not walking away and leaving this ugly situation behind until I see:

1. Pesticide Mfg/Distributor Litigation - IMMEDIATE BAN ON THESE 2-3 PESTICIDES AND THE TECHNOLOGY TO PERPETUATE THEIR GM INFECTIONS - No New Morgies Made/Can't GM Plague Spread if you're Flat Broke...
2. Congressional Hearing - CDC: Why no action on Morgellon's since at least 2002?! Where ya been? Cuz I saw you stalk a honeymooner on a plane for a strain of TB and you're doing studies about which states are the freaking happiest over the last 8+ years while thousands begged and screamed to you for help w/Morgellon's and you won't even answer an email...(but they blatantly WILL quickly share those emails inter-agency in order to go hide relevant alleged evidence - while they still ingore us, publicly? NO. This is why I have to make noise. That's malarky.)
Oh, Try Again, Cooked Geese. They created evidence, 11/25/09. We ALL have that evidence now. It's OUT.
The CDC is corrupt and malignant, they all need Pink Slips. CAP = Solution. Citizen Appointed Patrol (every single agency, Morgellon's and no new ITs, this never happens again)
3. DOP Misdiagnoses/Wrongful Death/Family Strife Medical Malpractice: Bad Docs, Time to Run - Next time, they'll all think twice on the Matchbox Theory and making jokes about US and our ziplocs on blogs and that we met each other on the web and faked so we'd all have the same symptoms, that we put similar holes in our bodies based on pictures of others lesions on the web, Munchausen By Proxy...(DOP was part of the Bad Guys' Morgellon's Plot)
You sue those docs for DOP/a bunch of ppl do, each in the towns the same docs did this just to a few of us/their malpractice insurance goes through the roof - they can't afford to hurt people w/their ignorance and corrupted mis-training, they'll learn to seek training that isn't paid for by Big Pharma, ASAP or they won't be able to afford to practice in within months, end of story.
(Special Interests like Big Pharma funding and corrupting AMA training - that junk needs to be illegal.)

The situation is HOT right now, Morgan. I'm excited!

The CDC got a copy of the case retro SSDI ruling (the details), they know people like me (and hopefully you) and many, many others fighting for Morgies that are NOT going to be silenced. This is OUR time. I can feel it...

I think seeing this 5 page case ruling would be soothing for Sue's family...

I believe we should ALL be including that 5 page ruling and the attorney hotline set up, showing that ruling/ongoing legal activity in ALL our doctor battles/re-education, to family and friends and employers that didn't understand us and to the CDC and to our Politicians and the Press. Simultaneously.

They all need to SEE. It's Dragon's case, but it's all of OUR stories

It's landmark and she just gave us a TON of hope for the whole situation!

FOLKS: WE ALL NEED TO SPAM AND POST THAT 5-PAGE RULING AND THE ATTORNEY ONGOING ACTIVITY/HOTLINE, EVERYWHERE - THAT'LL GET SOME ATTENTION. I HOPE WE CAN ALL START INCLUDING THAT IN ALL OUR CORRESPONDENCE. IT SHOULD HELP OUR BATTLE SO MUCH!

I'm doing it, it doesn't even apply to me - we need official awareness/factual #'s, since they won't keep 'official' track/are still trying to deny our #'s.

I promise you, Morgan - They're NOT going to get away w/this. If you know Sue's family, tell them I'm so sorry this all happened. I will never walk away until we have justice and others are protected.

I will read the writings on here & elsewhere about Sue's story and add her and her family of to the list of victims I pray for and I can never forget, that I will ALWAYS keep fighting for. These stories give me fuel and strength to keep going to bat for us, every day, for as long as it takes.

We're gonna make this better. We have the means. The tables have turned on the Bad Guys and we are now winning this war!

Please tell Sue's family I was a volunteer cleaning up litter and I contracted Morgellon's in Pittsburgh, when I backed into a tree, 03/25/06.

Please tell the Laws: Protection from and Justice for Morgellon's is my new life-long volunteer project. I will never sell out or back down, I won't stop until IT does and I align daily with more that feel the same - There's a LOT of people fighting for us now

Wishing Global Butterflies!,

[Morgan]

quote from belle
Want to advocate--but afraid

--------------------------------------------------------------------------------

At the moment I am still able to work. I teach school and if I were to come out and tell everyone I have this, I will lose my job. I am making the most money in our home right now and having a house depends on me for as long as I am able. I believe the original opportunistic parasite came from a student. I have no idea where the thing with the fibers and ALL of the symptoms on the Research Foundation site. I am going to ask my husband to speak with one our local Congressmen here in Savannah if he will. I am really down about this because I have been an advocate for my and my family's issues all my life. If I can get one doctor to diagnose me with Morgellon's however, I plan to pursue legal action against all the doctors who labeled me delusional and to heck with the consequences. I had really bad news today. My doctor who was helping me and even finding a research doctor to help me wrote DP on my chart today and insisted on prescribing a medication for it. He did humor me and order bloodwork for Lyme's disease. I will do whatever I can to help others.
____________________


Dear Belle,

I feel for you and I do understand. I had a DOP dx in a med center early on before I even knew what it meant.

Then I actually found a Dr. who diagnosed me with Morgellons. VERY shortly thereafter I realized that this was more of a hinderance than a help and he actually removed it from my chart.

Why you ask? Because as it stands right now in all of the medical journals and books ....Morgellon's = Psychiatric condition.

Dr.'s and insurance companies need a diagnosis to be paid. This leaves everyone in a very awkward position until a new diagnosis is concluded and released from the CDC or elsewhere.

Until then....well. Not good. We all have to take into consideration our individual circumstances and not jeopordize our livlihoods or destroy our reputations but strike a balance and live as authentically as possible as physically ill individuals.

I know I contradict myself here. I'm trying to strike a balance. I have a family as well and reasons to stay in hiding on this subject. So I do what I can, when I can and when I feel I'm having a good day I try and kick butt.
Unfortunately most days I'm quite ill. I wish I had enviro girls energy. lol

You stay strong. There are other teacher's like you. One of them in California acutally was a participant in the study itself. Her screen name was Chocket.
Every situation is different. The consequences of this disease are brutal.
Nobody wants to needlessly sully their permanent medical records but we ALL need medical attention.

So damn frustrating. I feel your pain and wish you the best.

Morgan

[lostintime]

I would like to use your letter or parts of it if it is OK.
I am fighting mad!!! I need to do more by contacting my representatives. I hope it helps. I agree with making noise and sending certified letter for action. If I don't do something I am afraid I might do something really bad that can't be taken back.
For me it's either fight or give up. I have been suffering for 5 years but did not know what I had until 6 mo ago. I don't want to live like this anymore and if this is ignored much longer or comes back as delusional I will turn into a martyr to make louder noise for those who continue to suffer.

Not too long ago I was happy in life, now I feel old, live with a continuing disturbing sensation, continually tired and look ugly.
I have no family, no close friends and only this site for support.
I have spent everything I had fighting this. Had doctors cut me up internally and preformed countless procedures that only messed me up even more.
I have been nothing but a sick science project.
Then I figured out what’s wrong with a microscope looking at my blood and other body fluids. I put the images on disc and gave it to doctors.
Doctors can see this but now won't help me.

Just like patriots before us, sometimes you have to fight.
This is an outrage!! I am beyond anger.
(When you corner a wildcat...guess what happens?)
I have found several connections with morgellons turning into brain cancer.
Sue Laws was not the first nor the last.
Rest easy Sue....



Aerosol Operation Crimes & Cover Up
Don't know if this has been posted or if it is what this is. Interesting anyway

[jonsi]

I'm with you guys!!!! Let me know what is needed & I will do it. The CDC isn't going to do it for us.

I've wanted to start a "M" Recognition day, perhaps on the fall equinox in September.

lostintime, you mentioned Clifford Carnicoms site

I know Clifford, he lives nearby. I have posted many of his articles and my daughter is the 9 year old in this study: Aerosol Operation Crimes & Cover Up


Here's another site: Health Freedom Threats: Codex, FDA, Vaccinations, GMOs :: HealthFreedomUSA.org Please check this site out. They have easy links to congress, etc to express our opinions on GMO foods, medicine, etc... I started a link to this thread. I need to get more active on this site again!!! (My daughter & I are healthy now, but no one deserves to go through the hell of "Morgellons".)

Itwl,
~jonsi

[Enviro Girl]

Hey, Belle - I'm so sorry, honey. It is hard to get your hopes crushed repeatedly when you need help so badly. There’s always hope: I learned what I suspect to be a/the cause of Morgellon's in 2008. I took that info. to an industry-leading naturopathic doctor and manufacturer of their own herbal medicines.
Their office knew of Morgellon's, but I think due to the cover up, they didn’t know how many of us there were and the darkness that surrounded us in getting help, globally.
I was crying when I called them on the phone, I showed them nmo.org and morgellons.org and told them docs/researchers that were trying to help us kept getting stopped/hassled/backing down and articles about their help on the web were disappearing.
That there were thousands and thousands of Morgies, across the globe and no one would help us. I was screaming and bawling. We needed help so bad and I didn't know what to do w/the info. I had.
They told me it would be OK. That they would do whatever they could to help us. Then, they went to work on IT with cutting-edge unique skills and they beat IT - like any of us would hope our docs would.
That's why it sounds like I'm in love - when I talk about My ND/Dr. Overman/Overman's Healthy Choices/Precision Herbs. I do love them! How could I not?!
KC and I waited almost a year after the new protocol we tried last winter to come tell others. She's my friend and to hear her & her kids safely healing (over the phone, across the country from me), that helps my broken heart.
Effective Protocol - also further confirms my allegation that agrobacterium was/is to blame, bi-coastally.
Hard not to be excited about My ND: The people who gave my friend, her kids and I our lives back vs. me in 2008 – not wanting to leave the house, being too scared to have children when I knew IT replicated ITs freak DNA in us and that IT could later lead to Brain/CNS Cancer...
If someone makes you truly better like My ND did for us, they’ll understand: it's kinda hard NOT to be happy about their amazing work and tell others that are still suffering, like you were.
I thought I'd be coming back to the web this winter to witness a cure contest. I wanted to compare results and total costs.
Instead, I see Morgies still scared, still too sick to work and function, still w/the ongoing routines and treatments, freaking about bugs and people trying to keep them from getting better w/Web Games, still.
I thought the entire situation would have changed. Belle's Bad Day/DOP tells me it hasn't.
- Belle, I want to help make sure you get to sue the PANTS off that DOP doc. I'm starting a Bad Doc Report Card on my website, I hope you will post that doc's name and office address/ph# there to save others from wasting their time and money and that doc won't get to HURT as many more Morgies - we can hopefully soon post our DOP Malpractice case rulings by the Bad Doc Report Card and I’ll put a link to the BBB! Woo-Hoo!!!
Folks, DOP Malpractice will make all docs think 2x about rude, mass misdiagnoses and to pay attention to patients’ physical evidence, permanently, despite their corrupt Big Pharma Funded CE training...
This will put the Bad Docs/that DOP'd many of us out of biz almost ASAP/stop them from hurting others in our own towns, right away. Woo Hoo!
- Also, (Belle) I'd be sure to have typed activity list of any DOP doc., over the yrs and your details on symptoms/other medical problems treated since and Morg contraction suspicions/timeline, w/dates - I'd get a copy of my medical records, I'd do so directly from the MIB, medical information bureau vs asking a DOP doc for a copy of my records...and I'd type up my interactions their misdiagnoses w/dates, doc names, phone #s/addresses.
Things they say, like: One of my pers faves, from a DOP Derm - "Do you know how many people I have coming in here every week bringing these PIECES of things that come out of them?!"
Do tell...Let's see how many of them I can locate w/a big ole ad in your local newspaper & w/TV and radio commercials/flyers: to get them to join me in taking you to court - where I'm gonna laugh in your face when the gavel bangs in OUR favor. How many people did you misdiagnose every week, Dr. Jerk?!
Making marks on my body to get attention - Yeah Right...I'm gonna show this turd that I know how to get him some attention. It's called: I'm gonna stand outside your lavish office on the sidewalk this summer, dressed in a Ziploc Bikini. I'll hand out flyers for better-trained docs to your potential customers, along w/a copy of My Malpractice Ruling - Ha Ha!
But seriously, folks - we may want to have this potential case info prepared and ready, because sometimes when you ask and pray for help - you get it!!!

[labrat]

i feel so alone in my country.. can u imagine this lonely soul picketing in front of the south african institution of "complicated" diseases.. they would dunk me in a straight jacket head first and drive me away to an undisclosed crazy farm for intense experimentation

[labrat]

only been to two doctors... the first didnt know what lice looked like and sent me home with sleeping pills.. that didnt help cause they not sleeping yet.. the second doctor asked if there was any history of insanity in the family.. i said no but there would soon be one

[Enviro Girl]

Rat, you're funny...Are you sure there isn't one more Morgie in S. Africa? Where/how do you think you contracted IT?
You aren't alone, you're just not geographically right here w/us

Besides, I'm sure there's plenty of Morg-successful docs that can help you through the mail (like my ND does). If there are no others in your country, then you can kick back and focus on YOU vs. organizing activism. OR you can help us plan our U.S. Activism & Awareness, if you want...

Does anyone know of another S. African Morgie so The Rat will not feel lonely???