Eyes sewed shut and My Mama passed away

[terri]

Hello all the last time I was here I was going to a derm,and nothing good came of it.He said he had many patients with this and gave me a drug called ORAP yeah look it up frustrating but it almost killed me I felt my heart get pressure and it ran across my chest I took an aspirin and it went away.So I quit with that drug and that Dr. Then my eyes were really bad so the eye DR here sent me to charleston where they are to do radiation on my eyes to shrink them back so I take them for their word,got there they tried to deaden my eyelids and sewed them shut.I was now blind I wasnt expecting this and I cried.I find out my mamas back in the hosipital but I cant let her see me like this mama is so inquisitive and I cant see her move around her.it would have upset her.I tried to get them to remove the stitches but they wouldnt but they did open the inner corner of my eyes 80 percent closed and when they opened the inner corners the most horrifying thing happened This Thing in my stomache really came to life as if it was breathing so loud I heard it I was sickened it wasnt the first time I had heard it.The Dr heard it but said nothing but I saw the look on her face and my daughter heard it.The eye Dr said go to an infectious disease specialist,so now Im cross eyed with a tiny slit of a view hard to see and looking at myself in the mirror I looked like a freak frankenstien all sewd and stitched up I looked so tired and like I was going to die and somehow all this made me weak,so I didnt want mama to see that my sister called my husbands cell which was outside in the truck I missed the call that was important but he got it the next morning and told me mama had passed away so I have been absent from here because of that I tried to read with the slits but couldnt the DR gave permission to remove the stitches when mama passed away, and it was done WHAT a couple of weeks its been..............love etrri

[Sadsack]

Terri -

What a horrible story!! I have never heard of such a procedure - they irradiated your EYES and then stitched them closed??? When are the rest of the stitches coming out?? What did they see in your eyes that they were trying to "treat"? Isn't that a procedure for cancer only???

And, of course, I am so sorry about your mother!!!

It never fails to amaze me how much a human can endure...I'm so, so sorry.

SS

[dizzy dame]

Terri, I am so sorry for what you are going through. We can bear a lot more than we think we can. You will have a place in my prayers. DD

[weredIgo]

Hi Terri,
Some how it never seems to be enough to say sorry to hear about a loved ones death. I read your post and feel for you. You poor thing, I am so sorry to hear of your Mothers death. Wish I knew a way to ease your heart.
The story you have just told us is frightening. The suffering most of us are having to endure is unimaginable to those who do not have this. The treatment they are giving you I have often thought is what it would take to cure this. Radiation and chemo. I say this because of my new respect for cancer. Dealing with this you come to realize you can't KILL it. It made me think of cancer. I hope with all you are having to go through that your eyes get better. This stuff with your belly noise, I've had too. Noise, vibrations and pain. Thank God I have not heard what you discribed today though and hope I don't in the future.
I feel I'm seeing the signs of this in my family. My son has been having trouble with his stomach recently and a few times trouble going to the bathroom (bm). Three weeks ago he was on the floor all night in great pain. Ambulance was called and he ended up having emergency surgery to remove his gallblatter. Seems you posted about that a while back. They have no insurance. Now my grandson is having trouble with his stomach. I am worried sick, but then I stay worried. I live with my son and family now and they have been hit so hard by the economy. All of this right after buying this house. I have invested everything into this and have not felt secure since before my husband died. The anxiety I feel is over the top and not good with this disease. We all are carrying such heavy burdens with this.
I really, really do send you good wishes and hate you are suffering so.Pray and keep pushing forward.



Claudia

[weredIgo]

Hi,
Oh yes, I forgot to say about my sons surgery that they found Gangrene. I just did a little reading on it. Maybe the powers that be should kook into this because of us morgies having long standing infections. You guys are better at this than me.

Claudia

[Jo]

Dearest Terri,

My deep condolences to you and your family. YOU Terri are a great morgie warrior. I will pray for your eyes to heal good hun. All this pain and you finally get to see an infectious disease doc!!!

I think Staninger said about laser treatment and morgs not mixing - so maybe this was similar? - Can I get mad on your behalf??

You concentrate on you Terri. God bless you.

With much love

Jo xxxxxxx

My heart goes out to you, your family and friends. I am lost for words but I really feel your pain. May our God bring us all relief. Amen. Love Glyn. xxxxxxxx

[BarbM]

Dear Terri,

Words cannot say how sorry I am for your pain and the recent loss of your Mother. Just when you think it can't get any worse for us, it does...how do we get beyond this?

When you mentioned your stomach making noises, I have this too, along with a moving large growth/cyst/tumor under my right breast, that circles around to the back. You can actually feel the "ridge-like pattern" through the skin, like something is growing inside of you. The movement feels much like a fetus moving inside! But when the pain hits, it's an entirely different story! I have never in my life felt such searing, tearing pain! I felt as though someone was performing surgery and just ripping my organs out by hand! The noises that come from my abdomen are so loud, you can literally hear them across the room. Noises that loud are not normal IMO. I have never heard anything quite like it before. It's as though whatever is inside me is roaring! And yet, they cannot find anything there! They can see the large lump, they can feel it in their hands, yet nothing shows up on CTScan, Ultrasound, or X-ray? WHY?

Again please accept my condolences and try to take good care. I have never before heard of anyone having their eyelids sewn shut either! Is this an accepted medical procedure in this instance? I am now terrified to see my opthamologist for the insects that are emerging from my eyes!

Prayers for you and your family,

BarbM.

[terri]

Hello FRIENDS , WITH ALL MY HEART I THANK YOU! Now this love and support is what this place is all about.I apoligize for not getting back earlier on this ,but Ive tried to stay busy.I learned to do this when I lost my husband,and my daddy,still it does come back.I miss her and I love her.The eyes were sewd shut because they were huge and were red,at this point I could hardly see they were red and were in alot of pain I had headaches because of them and a fever,as I had said I thought I was going for radiation to shrink the eyes from a thyroid eye Dr.I was surprised when I found out about the stitches and the novacaine shots hurt like crazyand the skin was not all the way dead at the outer corners where two of the stitches were to be put in were not dead at all she argued that she had put the shots there also but I knew she didnt only in the middle and the inner eye part so she put more on theoutsise but didnt wait for it to take effect she started sewing there inserting the needle I said it hasnt had time to work yet but the needle was partially the way in and yes I crying so I told her to go ahead and sew it,The stitches came out theday of my mothers veiwing,radiation appt with the other Dr is oct 13 the swelling did go down a great bit all night the 1st night water steadly came out inflammation I suppose.Thank you Sadsack,we have no choice but to endure,we can and will.Dizzy dame Thank you for the prayers.WheredIgo, The stomach noise continues and Ive been to the Dr and hospitalized with the stomach pain also my daughter,a friend, had gall bladder removal,my son,daughter-inlaw,has had the same exact pain,my daughter feels movements in her stomach and shes not pregnant.Im very sorry to hear about your son and grandson,and I feel its the same thing occuring in my family,makes you feel helpless,but determined to find the answers somebody to listen if we tell it enough maybe just maybe a good Dr will listen
and gangrene, oh my GOD I WILL PRAY FOR YOU AS I do pray for ALL of us.JO,yes get mad on my behalf as it makes us mre determined I believe,and JO,Thanks for the LOVE! BarbM,Thank you for the prayers,and no this noise is not normal,it was so very loud as if it had become alive again although it was far from dead I think it gave it more power,and it let me know in such a way with this sound how very strong it is I already knew though,since they can see the large lump,even if nothing shows up on CTScan, Ultrasound, or X-ray,do they stop trying?and the pain I say when it hits it controls you thats the only way I know how to say it because it dont let up until you throw up or until it gets ready also I know that diarrea is also associated with it,Also LOVE to Jonsi! and all of you here on the board...............love terri