This book is a must read

[pat]

I bought this book from Amazon a couple of weeks ago and would recommend it to anyone suffering weird symptoms.It 's not a new book many prob know it - but many prob don't.Called Mold Warriors by Dr Ritchie Shoemaker.I think this doc is spot on with this.
I reckon people don't think they have a mold prob if they don't see the stuff plastered on the walls.This is not the case,it may just be a musty smell,but its there.He says 80% of patients will say there is no visible sign in sites where they get ill.
A very informative book ,at the back he lists the tests to have and where to get them done.He mentions ciguatera fish poisoning,Lyme disease,and all the symptoms we are experiencing.He explains a lot about children being ill with this and all the testing he has done in buildings inc.schools.
Excerpt from back cover:'Do a group of people at your school/work all have a cough,fibromyalgia or trouble concentrating.This is the first book to offer hope for relief of chronic health symtoms caused by mold growing in our indoor environments.Pain,fatigue,headache,unexplained weight gain,respiratory illness,memory loss andd neurological illness are often caused by mold toxins.'
(I had the weight gain for years but must say after taking a cocktail of various stuff for mold i have lost 14 pounds in the last month.)
He tells how to recognise it,treat it and defeat the insurers,govt officials who say it doesn't cause serious illness.
Excerpt from p33: Unlike many Drs in 2002 I knew a brand new disease threat was emerging in USA-a cluster of biotoxin associated illnesses had been hatched in our rapidly changing environment.They were creating debilitating ailments like CFS and Chronic Lyme,not to mention the empty non diagnosis of fibromyalgia.
He talks of an eye test( VCS) which tests unique nerves that run from eye to back of head,which tells them if toxins are disrupting even slightly part of the brains function.
There is a ton of info in this book ,but I would like to say I am not familiar with the author...(I wish I was ...we need him over here) so I only post this to give info to you that may help.
Yes there are also parasites involved in this as I know only too well.But I believe it prob starts off as mold and drags the rest of the ?demodex ,Flies,etc. into us.Everything flying makes a bee line for me (no pun) and am sure it's because I give out the mold odour.
Also another thing that may help people with the burning mouth syndrome (which incidentally is another symptom of mold toxins) is Sesame oil.If you massage gums with it it will tighten them.I have been using it for awhile now and the burning is almost gone.Also been using a mouthwash called Chlorhexidine gluconate don't know if you have that in US but available from Express Chemist in UK.This is also excellent for sore mouths.
BTW Carla..when they closed the asylums down here..we now know where the lunatics went.They formed the Government!!

[tcmgpt13]

Here's Shoemaker's website and a few other links to pfiesteria which he and Schaller (who co-authored the Mold Warrior book with Shoemaker) were big on when I first became ill. In fact that is all Schaller wanted to look at in regards to Morgellons treatment (although mold was mentioned) at that time. That and get folks to have their whole house treated for mold and sue over it (which would be very expensive to carry out and high energy to boot--Schallers was beyond expensive and I could not afford to see him nor as it turned out did I think it seemed personally worth it). Since Bubba had posted that Pfieisteria treatment had not been enough to cure her Morgellons I did not pursue treatment in that direction (especially as the meds were so harsh and could have weakened my spleen even more).

I copied my post from Steve's old thread--since it is locked now I could not copy it in the normal way:

Re: Bryozoan Hypothesis Interesting pages about Pfiesteria:

This page discusses the protocol used for Pfiestereria detox (as used by Richard Shoemaker):

http://www.immunesupport.com/Library...h-Holiday-2002

Shoemaker's website (he used to have the free eye test posted on here, just required registration to use it):

Welcome to ChronicNeurotoxins, Inc. Home Page

More about Pfiesteria:

http://www.pubmedcentral.nih.gov/art...gi?artid=92361

http://209.85.165.104/search?q=cache...lnk&cd=7&gl=us

Multiple Chemical Sensitivites--many interesting references which could be useful to all: (environmental medicine references, doctor referrals--these folks might be sensitive to those who have this problem)

http://www.ctaz.com/~bhima/medother.htm

Here's what Dr. Bev said about Shoemaker a couple years ago:

Originally Posted by beverlybdmd

Philly,
I am not qualified to say much about diagnosing moldy buildings, but I have a very long experience with the Maryland doctor that you were considering seeing as a Mold expert. He is certainly VERY competent to diagnosis and treat Lyme disease. I didn't know him in the days when I was aware of Morgellons as a separate diagnosis, but he always focused primarily on toxic molds, and was an excellent advocate for individuals with these problems--legally as well as medically.

He was never as much of an advocate for people with chronic Lyme symptoms, and did NOT believe in any long term use of antibiotics when I knew him (4 years ago.) That is why he chose to withdraw from I.L.A.D.S. He saw Lyme as a bacteria that was relatively easy to treat, within a few months.

He is an EXTREMELY smart, knowledgeable, man who really thinks long and hard about the concepts and biology of the illnesses that he is trying to treat. Some of his theories have been widely used and accepted by many other doctors, some of his theories are not as well-received. It is difficult to say if he will be proved to be a complete genius, or a bit of a pompous ***. Probably just a tiny little bit of both, when the truth is finally revealed to us.

Perhaps this will help with your choice about who to seek treatment from.

As Dr. Bev notes above he did seem a bit pompous speaking on the autism/lyme live cam that I posted on here the day it was showing (while it was still on, unfortunately to see that now I believe one would have to buy the DVDs)

Thanks Pat for posting information on burning mouth syndrome. I had that fiercely when I lived in Hawaii and no one could figure it out. The only thing which helped was going to the one air conditioned room in the house. That was when I learned that common b vitamins were based on yeast (mold) and that I could not eat brewers yeast (I was supposed to eat that, and got so much worse). Fortunately I do not have this symptom to that degree now, but I will try the sesame oil for the occasional tingle. You have a lot of good natural suggestions which I appreciate. I have never heard of this connection before and now you have me wondering if this is why the Chinese add small amounts of sesame oil to some of their dishes while cooking.

[posey]

Hi Pat- I'll have to get this book. We have mold in our home. I've known it becuase I can smell the musty smell from our basement. Our deck is also slimy when it rains. I wish my husband would tear it down soon. Plus the middle of our big front yard retains a wet area which is where our septic system runs underround. I don't even venture outoors much. Although, I can't say it is much healthier indoors but atleast I have a HEPA air purifier which I try to keep where ever I am. It's a hightower. My son got it for my birthday.

When the movement began on me last Oct., via googling "movement on face and scalp" I learned of demodex. Everybody has these in their hair follicles but they can over populate if a person has a compromised immune system or is taking meds. etc. I thouht for sure this must be my problem. But, they come out at night and mate on the skin, then return into the hair follicle. Some research articles relate it to Rosacea.

I do agree that "M" is a real good probability of causing an explosion of their population in people with "M" and that's when demodex become a problem. I thouht I had rosacea until my hair began to dance on the top of my head and then began to reach out to my face!! So I dyed them hoping to kill whatever was there. No such luck and the coarser whithe things did not dye.

Animals have a different type of demodex and it can cause "mange" on them.

posey

[pat]

I can't find any reference to the Schaller you speak of tcm,it says the author is Ritchie Shoemaker with Patti Schmidt. Forgot to mention there is a foreword by Bianca Jagger who got this from her NY apartment.Also a foreword from a Richard Lipsey PhD.But it's interesting stuff and I can certainly see where they come from with what I have in the environment here.
I put up a fly catcher outside..as well as catching flies it has caught several of the black fibre hair like fibres which i see all over the place inside and out.Must take a pic of those.
The smell in the garden is rank.Slimey mold smell.
I went in neighbours house last week and she has a very clean place but the back of the chairs had the sticky tacky feel to them,just like my cupboards have.Guess it's just a case of waiting for these houses to fall down.Everyones drains are turning green and smelly too.
I think posey that we have a mix of things like demodex, fruit flies other flies that Jo has found etc.all in this together.Just a horrible scenario.
Also forgot to say earlier..and this may help you posey with your hair.I found Mark Neumanns mouthwash which is terrifically strong to work well on itchy scalp.I just put a few drops in a cup for final rinse and let it dry.The itch disappears very quickly.

[tcmgpt13]

Hi Pat,

Here's an old post I made from a couple years ago:

Originally Posted by tcmgpt13

Something I wonder about, how does the nano theory explain symptoms in people who have been sick for a couple of decades? I thought nanos were recently introduced into the environment. Is there something here I am missing?

China has polluted their major rivers heavily with toxic metals. Some of their people are now eating toxic rice, knowingly (short term life, in exchange for major illness later--what a terrible choice). Their rivers are also drying up, big time. (I do not even dare to think of the political problems which may ensue in Southeast Asia if other adjacent countries are eyed to help solve this problem.) Pollution in of itself probably adds to the algae blooms' appearance in lakes, rivers and oceans. I feel it is the toxic load (heavy metals, old viral and bacterial infections) of the body which heavily contributes to the susceptibility of some to developing morgellons upon exposure to causative factors (which so far have no official scientific explanation). I also believe genetic makeup which may increase susceptibility to morgellons. Genetic inability to handle mold in the body is perhaps one contributing factor (book Mold Warriors by Richard Shoemaker et al). Red algae exposure would surely contribute an extra mold load to those so handicapped genetically. There may be other genetic problems which could make it easy for morgellons to take hold as well.

I do feel that detoxing the body of heavy metals may aid in at least partial recovery from morgellons. Also for those with genetic problems in handling mold far infrared saunas may help some rid the body of both toxic heavy metals and mold via the skin. Not all can use this form of treatment, but it might be worth investigating. Detoxing (far infrared sauna and foot detox machine along with herbal treatment) has improved my symptoms. Along with some oral sprays which help remove toxic metals from the body.

The et al I mention after Shoemaker in the above post is because I was loathe to mention the co-author of the book, at least on the copy I have, which does list James Schaller, MD & Patti Schmidt. Perhaps there has been a falling out? Therefore yours may be a later copy than mine which was purchased in 2005. I don't know, but I believe Schaller is no longer on the MRF board either. The name on my copy is written at the bottom of the front cover just below Shoemaker's name. The picture on Amazon of this book still shows Schaller's name too.

[Sadsack]

TCM -

I noticed that, too....and Savely and Stricker have also been dropped from the board. Don't know the issues, really, but I suspect a little competition between Savely and ML.

Seems they are both publishing articles on Morgellons, but clearly Savely's is far superior. She is using a database of over 100 (111?) subjects that she has seen clinically, ordered blood work, treated, etc. The MRF's "subjects" are 25 internet self-reports (excpt her little boy, I think).

Wonder if Schaller is writing a book about Morgellons??? lol

SS

[tcmgpt13]

LOL, SS, it could happen...My impression was that Schaller seemed to think he alone wrote the book which has Shoemaker listed as the lead author.

As far as Morgellons "researchers" sometimes I think that there should be a gate which is marked "leave your egos, all ye who enter here" before they are ever allowed to even see a Morgellons patient.

Maybe Savely and Stricker wonder where Harvey is too and have quietly left MRF? It is a mystery not to hear anything from the lead author of this recent article, for over a year now. Even more mystifying is that parasites have been so downplayed in this article when Harvey seemed to have found (in some Morg patients) and identified at least some of the parasites.

Anyway I hope this sentence from the conclusion of the Morgellons article somewhat reassures you and others. Although this study is not definitive it is a start (guess we have to take what we can get):

"Since infectious agents can initiate
and maintain chronic diseases, the behavioral and other
CNS manifestations here are more likely effect than cause
[18]. We suggest that the Morgellons label be considered
to displace any label suggesting delusion as the primary
cause of this phenomenon."

So they are clear DOP does not cause this disease process.

[kmar]

Originally Posted by Sadsack

TCM -

I noticed that, too....and Savely and Stricker have also been dropped from the board. Don't know the issues, really, but I suspect a little competition between Savely and ML.

Seems they are both publishing articles on Morgellons, but clearly Savely's is far superior. She is using a database of over 100 (111?) subjects that she has seen clinically, ordered blood work, treated, etc. The MRF's "subjects" are 25 internet self-reports (excpt her little boy, I think).

Wonder if Schaller is writing a book about Morgellons??? lol

SS

I saw where Savely and Stricker were gone too, but this link says otherwise. How did that happen?

Medical Advisory Board Members - Morgellons Research Foundation


That link above was listed on that
Morgellons Research Foundation Com - Morgellons Disease - Lyme Disease Support Portal "fake" place trying to sell stuff.


If I go to Home - Morgellons Research Foundation , then I can't find Savely and Stricker listed on the medial advisory panel.

[carla]

Pat wrote

BTW Carla..when they closed the asylums down here..we now know where the lunatics went.They formed the Government!! __________________

LOL You can say that again Pat, from one that held the Criminally Insane.
But it looks like we are finally waking up to the fact.
Conspiracy fever: As rumours swell that the government staged 7/7, victims' relatives call for a proper inquiry | Mail Online

[Robin]

Hi Everyone,
Thanks for the info Pat! i agree about mold remember a couple years ago i told you guys i had mushrooms growing in my parlor.that yard was strange anyways the tomatoes grew back by themselves 3yrs in a row. very strange! i think the mold def escaalted my disease it really came on strong when i was living there.you remember carla(right?)
Why is it that these quacks are seeing the parasitic infection but they never list it as a possibility? it wouldn't be the first time they have scewed up remember they created the killer bees by accident that was a major blunder! i really want to know who did the studys for these beneficial nematodes there were no guidelines and they had absoulutely nothing to base it on! anyways sorry thats another thread lol! T.C i didn't know you lived in Hawaii which island and how long?
XO
Robin