help me

[inmorghell]

I need someone's help. my husband, no matter how many times i explain to him does not understand the extent of emotional trauma we go through everyday with this>>>> I think he would better accept it hearing from someone else thank from me all the time. I am too sick to keep this up.... he doesn't understand my depression, why I never go anywhere or enjoy things I used to. I been trying to push myself to get out, but I still feel crappy. can someone please tell him through this message board how seious this is and that people do die from this and the many complications? all i need is one person to help me with this. we argue and fight constantly, i used to be confident and independent, now my esteem is way low and i always accuse him of cheating, my poor husband i feel so bad, i have never been this way in the whole 8 years we have been together. i refuse to see a doctor because the physician at the ER told me that he doubts I have any type of "star trek" symptom (meaning that crawling) I get in in my back where I can't reach or see well and i am at the end of my rope. i feel morgellons has cause secondary illnesses in my body, and if I am sick, if I do die, i want him to understand that I love him and I can't help these things no matter how hard i try. I want us to be happy like we were whether I live or die. So many other thingsused to be important to me that are so useless now, and now I am just grateful my heart beats one more day to be with him and the kids

[carla]

Sorry your going through this too.Your right not to bother with Doctors.
The medications just make us worse.First of all have a 3 day fast on water melon juice. Organic if possible.
Then only eat organic foods and drink lots of pure water.

Your symtoms will disappear if you can keep this up.
One thing Morgellons does is stops us going outside and so we stop getting Vitamin D.
This alone is enough to cause Depression .

Living with Morgellons-Treatment Suggestions

[-----------]

Hi Inmorg,

I don't know where to start. What's happened to us is hard to explain to people that this hasn't happened to. You see, you have to remember back when a bug bite was something that happened and you put some medicine on it and it was gone in a few days. Before your reality was changed. You can't change the reality of those who have not experienced this - they are stuck in the normal, what they believe to be - the 'real' world, they are oblivious, through ignorance (not knowing) that things are happening all around us!

It's like you can see the world through the eye of a microscope and this other person doesn't know what a microscope is. So, when you describe things that are definitely real to you - to them - because they can't see it, feel it, find verified medical information about it, you doctor can't find it, etc., then how else are they to react?

We have to realize that there are three factions of people out here when it comes to them believing us or not.

Group 1 - There are those who give us the benefit of the doubt. They think 'something' is or has happened to us, but are not sure what it is. They are waiting on further information, that they know is coming, in order to make a decision on their belief. It is a form of loving you unconditionally, as in 'for better, for worse...', these people you can talk to and get support.

Group 2 - These are the people that have to categorize everything that comes along when it happens. They have to run through what they know to be 'real' and find the validity in their belief systems based on their experiences and reality to conclude whether something is true or false. And, then there is no changing their minds once they have incorporated this new belief into their 'systems', they have closed their minds. This is the more extreme person that is dealing with our issues, they might ask you to seek psychiatric evaluations or care, take psychotic drugs to help your condition, insist that your reality is not valid, etc.

Group 3 - These are people that are having your same condition happen to them. They know exactly what you're talking about and living. If you'll notice that we have no trouble in communicating our disease to each other - we don't stop and ask - 'what are you talking about?' - No! - because we know from our same experiences. (And, no, we have not all drank the same kool-aid, we are strong-willed people, noone is going to dictate their reality onto us for very long.) You realize that we've had to make up a whole new vocabulary for this disease and yet, everyone understands the words? It's no coincidence that we all have the same lesions, we're all emitting the same things from under our skins, our skins are being covered by the same biofilms as our fellow Morgies. If you look close enough you will see that your fibers are the same as everyone else's. It is this sameness that determines this disease.

Most of us have found it is nearly useless to try and communicate with the non-Morgies, especially after they have made up their mind that this is a psychiatric condition and not a real one. That you should not try to alter their reality, they have to come to these conclusions on their own. One remains in ignorance through lack of knowledge, that if they are interested, they will search it out and correct their faulty thinking. That most in this 'extreme' group are close-minded.

It's best to talk to fellow Morgies to receive the support and understanding we so need. If you have some acquaintances in the Group 1 category, go to them also.

[Sadsack]

inmorg -
Go to Morgellons.org and have him read up on it. There is a letter to the physician on that site, and there is another one on Dr. Wymore's site at OSU. You will have the best luck convincing him if he reads things like that rather than hearing it from another Morgie.

SS

[ladycolorado]

You might like to know that The National Library of Medicine DOES have Morgellons Disease listed:
Morgellons Disease
Know that you are not alone and that there are many good people in here.
(LC)

[Katinka]

Hi Inmorg,
we all know how you are feeling and that it's not easy to cope with either
with this disease nor other people or even family members who just aren't able to understand what 'this' is all about. Who could blame them? Just think, would you have believed this before? Probably not.
Well...it is quite strange we all must admit...I couldn't believe it either even though I could easily SEE these strange objects on my head. The problem is that it's just too unbelievable and weird noone thinks it can be real...You have to 'live' this in order to understand.
But let me give you this. Maybe if you show your husband or other beloved ones around you it might help them to atleast believe this is not in your head and you are not 'crazy'.

Here's a link:
General Information | Unexplained Dermopathy
CDC Investigation | Unexplained Dermopathy

and show them thiis:
http://www.cdc.gov/unexplaineddermop...assn-final.pdf

This should give you some credit I think. You can ask them if they think the CDC would waste their time and money investigating on 'nut cases'?
Surely not! And inform Medical Associations, if there was nothing to it?

Just let them think about it.

Anyway...I wish you all the best, and please feel free to ask for any support you might need.

And welcome!

Katinka

[Baraka Obam]

Here is a list of skin anomolies and a few simple tests for you.

He has it but he is not showing your symptoms yet, this takes time from infection or birth. Some born with this have deadly adult disease that they used to see ONLY IN ADULTS, others born with it have lets say, very bad eyes, some only have skin anomolies.

I do not know if women are more prone to the big problems then men are, do not forlorn ladies, men ALWAYS die sooner. It should be your honor to stand over that grave and say, I TOLD YOU!!!

Here are the syptom signs, bright red spots that do not bleed, then there are the spots that look like moles, freakles, or just a tiny tiny scab when picked it bleeds like all hell. Lets pick up on the end of the nose, the nose will have a brown or red dot on the end of it. Lets not forget the white dots, and the white large plaque spots, the big ones are later stage. Look at the ear lobes and inside the ears, watch for him to dig in his ears, feel for bumps under his head hair. You will find red skin in and above his mustach line on the sides of his nose. There are so many little aspects of this disease. Take your finger and run it up and down the shin bone feel the little bumps, yeah baby you see where I am going, he is just as infected with this as you are but maybe because of gender he does not show it the same way, anyway EXACTLY THE SAME WAY.

Here are a few little tests to do on his ears, use hydrogen peroxide 35% on the whole outside ear, what you will be seeing is the proxide going into the holes that the malady creates in the skin. The white stain will go away but you will see it, now he in the back of his little pea brain will know, I ALSO HAVE IT. You can get rid of the bumps on the shin bone with many many applications of GSE. Most likely all the underskin stuff can safely be killed off SLOWLY but surly with GSE. If you have not yet seen your lesions this may bring them out if you treat them too roughly, meaning dilute the GSE, but not untill its like water.