Living with others when you have Morgellons

[Sadsack]

I acquired a "roommate" a week ago, a friend for nearly 30 years retired and moved down from NYC to live in this house in FL.
OK - the dilemma - I have Morgellons, but my symptoms are greatly improved. My ritual is to wash bedding every night (or every other night), have very few clothes so that everything I wear is recently laundered, daily bath/shower, and supplements. I don't wash the floor everyday because I am afraid the increase in humidity will cause a mold problem.
The roommate has had Morgellons longer than me but never got anywhere near as bad. No lesions, doesn't complain of biting/stinging, but has that itching confined to certain areas. He also had a major league "black speck shower" from his scalp, and I have seen black specks on him after we've been in the salt water for awhile. (draws them out)
I've talked him into certain modifications in hygiene practices, and got him to take vitamin/mineral tablet as well as milk thistle. Trying to influence his eating habits with so-so effects.
He admits he probably has M's, but he doesn't know anything except what I've told him. And that is fine, because he would probably become dysfunctional if he really knew. If he ever gets worse, he'll find out soon enough.
I worry about sharing common living quarters (we each have our own bath and bedrooms).
What do other people do?
SS

[niecy]

Sadsack,

I live in the house with always 5 or more people, and have company every single day, at times numbering into the teens. But there are at least 10 people in and out of my home on a daily basis. I am fairly positive that some have this, but I don't think they got it from my home.

I am not someone who knows a whole lot about anything in particular, and don't profess to be. But the advice that I would give you is to not panic about people being in your home. Just do your best, and try to live as normal of a life as you can, under the circumstances.

This illness has already taken a large chunck out of our lives, and we should try to keep all that we have left, and enjoy it to the best of our abilities.

If this is in the environment, it is not just our homes, it is everywhere.

You asked, "what do other people do". I for one just try to enjoy my life, and have a life. You may actually enjoy having someone in your home to talk with and not be alone all of the time. That in itself, if you like the person, could really help your mood and be an uplift to ya!! Especially if they are going to be helping out financially......I just had to move my brother out of my home last night, when they aren't helping financially it will place and unbearable burden on you. My electric bill for last month was $555!! No help from him on any bills or groceries....it was like having a teenager back at home.....I love him, but he had to go!!

Just make sure that what you are doing is the best thing for you.

Anyway, best of luck to you!!

God bless You!!!
Niecy

[carla]

My home is like an airport lounge Sadsack.
And I too am convinced a few visitors already have this already from other sources.
It was my main ''keep myself awake all night worry '' and I would have gone insane if I didn't finally accept that it was out of my hands.
Keeping your Immune System strong seems to lessen the fibers. Stressing over this will weaken your immune system more.
Great advice again from Neicy.
carla
xxxxxxxx

[Sadsack]

Thanks, guys -
Oddly, I am more concerned about getting worse myself! "Roomie" has it but does not practice the same hygiene regimen that I do, likes to touch everything, etc.
If I only knew what to LOOK for, ya know??
I've finally come to the decision that I have to compromise more than I have been. Even if that means maybe having more symptoms...I'd also have more LIFE!!!
SS

[Kritters]

Yeah...great advice from Niecy, follower of Jesus.

"Just make sure that what you are doing is the best thing for you.

Anyway, best of luck to you!!

God bless You!!!
Niecy"

You know, I'm trying to think back on my biblical reading (and yes, I have read the bible cover to cover several times plus had taken several bible study courses before I decided it was NOT the innerant word of God) to find any similarity to that statement and what Jesus would have done.

mmmmmmmmmmmm

NOPE. Can't think of one.

Peace and love and biblical teachings,
Kritters

Luke 6:27-36

Love your enemies; do good to those who hate you; bless those who curse you; pray for those who treat you spitefully. When a man hits you on the cheek, offer him the other cheek too;WHEN A MAN TAKES YOUR COAT, LET HIM HAVE YOUR SHIRT AS WELL... when a man takes what is yours, do not demand it back. And when your brother runs up the electricity...have a party!

hell no... just kick him out. especially if he is your brother.

[niecy]

Kritters partial post

"Luke 6:27-36

Love your enemies; do good to those who hate you; bless those who curse you; pray for those who treat you spitefully. When a man hits you on the cheek, offer him the other cheek too;WHEN A MAN TAKES YOUR COAT, LET HIM HAVE YOUR SHIRT AS WELL... when a man takes what is yours, do not demand it back."



I am very glad that you posted this scripture, it seems very fitting at the moment. I would like to post what you didn't in that scripture....

Luke 6:37-42
37Judge not, and ye shall not be judged: condemn not, and ye shall not be condemned: forgive, and ye shall be forgiven:
42Either how canst thou say to thy brother, Brother, let me pull out the mote that is in thine eye, when thou thyself beholdest not the beam that is in thine own eye? Thou hypocrite, cast out first the beam out of thine own eye, and then shalt thou see clearly to pull out the mote that is in thy brother's eye.



All I know to ask of you Kritter's, since you know so much about my situation with my brother, is will you please pray for me....to whoever it is you pray to.....and ask that being to help me to do better.

I have turned the other cheek to you, and I will pray for you, and if you need a coat and shirt.....just send me your address and I will get right on it......and I won't demand any respect from you....cause you already took it, and I wouldn't want to ask for it back.

Niecy

[carla]

Thanks, guys -
Oddly, I am more concerned about getting worse myself! "Roomie" has it but does not practice the same hygiene regimen that I do, likes to touch everything, etc.
If I only knew what to LOOK for, ya know??
I've finally come to the decision that I have to compromise more than I have been. Even if that means maybe having more symptoms...I'd also have more LIFE!!!

Sorry Sadsack,I see what you are saying now.
I know exactly what you mean about him touching everything.
You will have to talk to him and if he is considerate he will be a bit careful.
My inconsiderate Ex still lives in my house and he throws his dirty washing down the stairs at me ,combs his hair in the kitchen,leaves the lids off food and generally drives me up the wall.
I tried to explain it all to him but he thinks I'm saying he is the source of my illness and gets defensive . I got sick of the rows and gave up.
I now follow him around with a a spray bottle full of vinegar and pray.
xx

[Kritters]

Niecy,
I'll end this here, since I was the one to make a point. I really do think you are true to your beliefs and probably a very good person, based on your communication here. You have painstakingly taken the time to pull up some quotes of things I have said pertaining to God to prove some point (which I didn't get)in your last post to me. I do have beliefs and once in a while will say something to support others' beliefs when I feel it could help. However, I don't talk about my beliefs on a regular basis on this forum, because I respect the fact that not everyone here has the same beliefs, and shouldn't be made to feel uncomfortable.

What I quoted, I did for the purpose of making a point. I'm not being a hypocrite because I don't profess to follow the teachings of the bible, which I do not believe to be the inerrant, literal word of God. It is my right to an opinion I have based on my personal research and lifelong observations. If you truly 'turned the other cheek' you wouldn't have responded at all. But you said what is in your heart, nevertheless.

And yes, everyone has a right to express themselves here. You have and I have. And I do respect you. I realize you will continue to express your faith here on this forum, which you basically have a right to do. I just become uncomfortable because I have witnessed other people being made to feel 'left out' if they don't share beliefs.
And yes, sometimes I get my back up about it.

And speaking of backs, if you need a shirt or a coat, you can give me your address and I'll send it to you as well.

Carry on carrying on.

Kritters

[Sadsack]

Carla -
You DEFINITELY get it! Does your ex have Morgellons?
The day before yesterday was awful. Disagreements, hurt feelings, misunderstandings.
Yesterday was MUCH better. So we are both working at it, trying to accommodate.
"Doing what is best for me" is actually the HUGE question...I just don't know....I know I am enormously better, but I've done hundreds of things along the way, and some of them may have been unneccesary, some even counter-productive! I know for sure a few of the things that have helped, but so much is "maybe this will help". So doing what is best for me is a mystery.
SS

[Sadsack]

OK. Who sits right on their couch?
Who changes their sheets every night?
Who has a wardrobe of more than 3 outfits and lets things hang in the closet for months before wearing them again?
What do you wear on your feet, especially in the house?
I worry about all this crap, and have almost no clothes. Have thrown them all away. I put sheets over the couch and change them daily.
It's nuts.
SS