Information at Morgellons-Research

[posey]

I was reading and printing last night from Morgellons Disease Research and was very impressed.

At this point of what I am going through with "it", I have decided I am going to follow the information there. For one thing, because of it being a valid research foundation it gives me something with credibility when expressing my feelings to my spouse. As hard as it is even just to explain it to someone not living it, it's even harder for that person to believe it. I can't say that without any credibility I would be so open to it, if I weren't living it.

However, I do think anyone in the scientific, research and/or medical field who may be more knowledgeable about illnesses in the past which weren't believed only to be proven a reality and science in general, should be very open-minded to just about anything, even if it sounds as if it is from the Twilight Zone, when the suspicious illness is brought to light by thousands of people. I would assume there would be some who are DOP, but thousands of people didn't get together and say, "let's make up this weird skin disease just to drive the Dermatologists crazy."

I went through this doubt with Fibromyalgia years ago when it was first so very unbelieved. I absolutely refuse to be "labeled" in any way once again. Back then I could be obviously in extremely severe pain only to be judged as someone looking for a "high", continuously being demeaned, doubted, and dealt with as some depressed female in a frenzy. The way I, and so many others (men included) were made to feel is not what I would call good quality healthcare. The capital letes behind a name do not give that person the rights to intimidate anyone who is in need of health care, nor to minimize the situation. None of us have the same weaknesses and strengths and if someone is traumatized from an illness they have to deal with, shouldn't this be taken into account and the person treated with respect?

Well that's enough of that. Posts too long are no fun to read. Hopefully this isn't.

Be well,

posey

[Kritters]

Hi Posey,

Very well said and succinctly expresses the thoughts of all of us.

thanks,
Kritts

[aussielee]

Thankyou Posey, very well put and my thoughts also
Lee xx