what have you learned about morgellons

[terri]

I read that we are close to find a cure,please what have you learned about this disease and why its said we are close,what can we do inthe meantime please Franky, I read that some people go into remission does that mean the people who have beat this,has it returned? thanks love terri

[carla]

You have got me stumped Terri . It gets more complicated every day for me .
I don't know of anyone who has been cured either.
I think MMS could be the closest thing to a cure along with supplements,pure water and decent food.
I hope your ok.
carla
xxx

[lgiselac]

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

[Sadsack]

What have I learned about Morgellons?
I learned it sucks. I learned it's a thief that will take, or at least try to take, anything and everything that has ever meant anything. Family, friends, homes, finances, health, sleep, peace, joy, pets, dreams, goals, interest in life, plans.
What has it given me? Fear, panic, sickness, shame, embarassment, loneliness, confusion, pain, tears, depression. isolation, desolation.
It's made me wish the end were at hand, it's made me look over my life and second guess so many of the decisions I made - if I hadn't moved to this state, if I hadn't stayed with that person, if I hadn't worked so hard and run myself into the ground, if I hadn't taken all those medications, if I didn't do yard work....on and on....maybe I wouldn't have gotten this awful, horrible nightmare...if I hadn't been born.
I was the last live birth in a large family, my mother had many miscarriages after me....why couldn't I have been one of them?
SS

[faithinacure]

Hi Sadsack:
I can totally relate to everything you feel, but I don't think we could have ever escaped this thing, really. I think maybe the reason we have the disease in these early days is to pave the way for the people who will come after us, desperate for relief. Just like all of you were there in my darkest hours. I see the disease everywhere now. I've noticed there's no stopping it, cause it's in the air, wind. airplanes, grocery stores. People who are high profile are getting it now and I think some know what it is and others don't. We'll be there to lend a hand for getting through the toughest times. This may be old news to some, but I've been taking alpha lipoic acid and L-Carnitine and it's helping with brain fog and lucidity. Thank you SadSack for all your insightful posts.
Love to you all
xoxo Faith

[Sadsack]

Thanks, Faith -
I really hesitated before sending that post after writing it; it's not very "uplifting" but this is an especially low time - not just the Morgellons, but many other issues - family sickness, etc. I also thought, Christmas coming, I'm sure I'm not alone in how I feel, and sometimes I get relief when someone describes something they feel that I feel, too (and isn't very "positive").
SS

[terri]

Hi carla sadsack faithinacure,Sorry Sadsack,We do know what you mean,it is a selfish disease,we share your hellish nightmare.Is apple cider vinegar good for us?, is taking a bit of baking soda? what is metalbolic? what did the other people do that cant feel this anymore Ive read what works for one doesnt necessarly work for another,is there nothing we can do to speed the process of recovery I know about peroxide conditioner dish detergent although that dont work so good anymore.If we are close then what have we learned? Like all of you I am sick and sick of this, May GOD bless and hear our prayers. love terri

[faithinacure]

Sadsack:
Sweetie, gosh I've admired and loved your honesty and courage since I've arrived here. I feel all those emotions too. We are all so alike and fragile. I am so sorry if that message came across in a way that made you feel mistaken in telling us all the words we all feel. Please don't stop saying exactly how you feel. That is why we are here, to be safe and tell everything that's in our hearts without fear. I am in the process of putting together my story and things that I'm doing to get well also. I'd like to give back, as you have so many times. There's so much suffering in this disease. Sharing is our path to living with this conditon and healing ourselves
.
Love Faithxoxoxo

[carla]

If this thread was titled What has Morgellons taught you? then my post would be a mile long.

[Franky]

Originally Posted by terri

I read that we are close to find a cure,please what have you learned about this disease and why its said we are close,what can we do inthe meantime please Franky, I read that some people go into remission does that mean the people who have beat this,has it returned? thanks love terri

Hello Terri, I have learned unfortunately that morgellons can take a perfectly normal person and devastate them physically and mentally. My long time and ex-very close friend, went from a very vital young man to a shell of his former self. He would never be himself again, sadly.

The Disease does not discriminate,from the old to the young!