A TRIBUTE TO US
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  #1 (permalink)  
Old November 9th, 2007, 04:26 PM
ladycolorado is Fear grows in darkness; if you think there's a bogeyman around, turn on the light.
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Default A TRIBUTE TO US

this is a tribute to carla, franky and ALL the members in here to me you are ALL angels to me in here. our wings may be broken my friends but we shall learn to fly . here is a video most should enjoy and find uplifting about angels, click the blue link: http://www.youtube.com/watch?v=-LeLFaXL8vg . (LC)
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Old November 22nd, 2007, 08:42 PM
Franky is working on updates
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Default Re: A TRIBUTE TO US

Lady C just want to say the site has brought me lots of joy, in the sense of being able to have a place for all of us to just hang out, exchange ideas, help each other and exchange info.

Hopefully with the new year to come we can even help more people and make new friends until a cure is found or better treatments.
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Old November 22nd, 2007, 08:59 PM
ladycolorado is Fear grows in darkness; if you think there's a bogeyman around, turn on the light.
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Default Re: A TRIBUTE TO US

I hear you franky iI get much joy in here myself, thanks, (LC).
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Old November 22nd, 2007, 11:01 PM
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Default Re: A TRIBUTE TO US

I dont know about joy, but its nice to drop the pretense.

And yes, I have nothing better to do than go on the internet

This christmas will be 5 years of sureal hell. So sureal I cant spell it.

I forget who i used to be, hoho

I think ive become the itchy show

with the parasites pushing their insidious moonshine in my blood, the sleep deprivation and the isolation its a wonderful world.

I think my neighbours think im a little odd too

Its just an impression I get when i go out to water the tomatoes each day mudpacked like the creature from the deep.

But maybe im being overly sensitive.

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Old November 23rd, 2007, 08:17 AM
ladycolorado is Fear grows in darkness; if you think there's a bogeyman around, turn on the light.
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Default Re: A TRIBUTE TO US

Yes Dave it is natural to feel like doo doo being stung and little or no sleep, let alone rem sleep. I went only 7 months like that, it was awful. when I had a Groshon catheter put into my chest, an exodus of black specks erupted from every wound to escape the Ceftriaxone my heart was pumping to all the places it was hiding. An hour nap, I would immediately be dreaming trying to play catchup. I now sleep more often and dream although tonight was not one of those nights. I may be in 90 percent remission, with my Morgellons Disease and all the accompanying diseases coming along for the ride, but 10 ten percent left still stinks. However, I have found being in a constant depressed state only make my symptoms WORSE. I vent in here but if I let myself sound too negative I scare some in here and they become afraid for themselves. So, I am honest but try to stay as positive in the telling, like when I had a worm family living in my back and stinging my spinal chord. My life is by no means a bed of roses, before the medicines, I was becoming crippled. Let us just say for me, and many this "cheerfulness" is a survival tool, like a big fat cannon blasting the disease . If you have read the letter from Dr. William T. Harvey, chairman of the MRF you find that he talks about groups of patients. I am in the group which is 90 percent well, but also in the group where my skin symptoms are not resolved. Nor are many other symptoms completely. However, I have had two brief periods of 100 percent remission. I missed an American study of a vaccine that in both the USA and London cured all of those with Morgellons Disease in seven days. So far a 100 percent curing and blocking vaccine still in research.Missed one doc call the clinic then closed due to his partner Dr. Martz being sick. I missed my chance of being normal again. This is also why Harvey has brought together a VERY competent task force to DNA sequence and identify at least four types of the parasites plaguing us to streamline treatment, and to be released in a defining paper so we do not have to be miserable like we are and the retarded docs have less argument to turn us away. So I can understand your venting yes. I think too Lyme disease is carried and spread by much more than ticks. Austrailia has ticks, but a different species carries it. So, sceptics get in the way of treatment because not the "right" bs tick. Oh and Morgellons Disease is just too strange a concept to wrap their limited textbook brains around, worldwide. You have had this for five years, I have known of one had it for 27 years. Imagine finding help back then? ??? If you want relief do the treatment steps they DO work. However it does take time unfortunately. I have Babeoisis as well and could drop dead from a heart attack. I could also have a truck run me over, or a meteorite hit my town I would just be a flash. So I make the best of what I have for a life. However, I do know 100 percent remission is possible, and that there will be more than one avenue to achieve this both natural and traditional. I DO know your frustration Dave. Anyway on a lighter note (LC).
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Old November 23rd, 2007, 10:45 AM
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Default Re: A TRIBUTE TO US

I hear u lady
But i hereby take no responsibility for anything i might post whilst pissed

Also I sort of agree but even sober I dont believe in positive thinking. Im more of a realist.

And prefer to be honest with myself, its the only solace i have, that and chemical escapism.

Also

Support is wonderful , but the last thing we want to do is start to need the disease, if that makes any sense.














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Old November 23rd, 2007, 10:53 AM
ladycolorado is Fear grows in darkness; if you think there's a bogeyman around, turn on the light.
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Default Re: A TRIBUTE TO US

Uh no do not need the disease at ALL, I agree. It is something I have never desired I miss being healthy and I have NEVER liked pain, thanks. However, my focus is on getting well. I would like for others to as well. SO, I hate the disease and wish rid myself of it like us all in here. However, I do not wish to be miserable it is just not me.Plus I do not need to be a sadsack having my family home and a life outside of this board. What has helped the most so far besides the DE? (LC).
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Old November 23rd, 2007, 10:54 AM
Kritters is a fungus magnet
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Default Re: A TRIBUTE TO US



Support is wonderful , but the last thing we want to do is start to need the disease, if that makes any sense.

Hey Dave! that sounds like pretty positive thinking to me!

Kritters















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Old November 23rd, 2007, 12:44 PM
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Default Re: A TRIBUTE TO US

maybe kritters
but the thought has occured to me that if a bug has been putting a chemical into my bloodstream for 5 years, be it a tick or whatever, could i be addicted to that chemical no matter how unpleasant or will i feel healthy without it
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Old November 23rd, 2007, 02:12 PM
Franky is working on updates
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Default Re: A TRIBUTE TO US

Quote:
Originally Posted by aussiedave
I hear u lady
But i hereby take no responsibility for anything i might post whilst pissed

Also I sort of agree but even sober I dont believe in positive thinking. Im more of a realist.

And prefer to be honest with myself, its the only solace i have, that and chemical escapism.

Also

Support is wonderful , but the last thing we want to do is start to need the disease, if that makes any sense.
Aussiedave here is the thing about this site. I am also a realist, but at the same time I can be positive as well. Everything does not need to be doom and gloom. I suggest if you cant be positive or have no control when your are pissed, count to ten before posting. We will not tolerate excessive negativity here. Once again this is a SUPPORT SITE. Please lets try to stay positive esp. for the newly sick. Thank You.
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