A place for us "ultra-sensitives"

[maryok]

Just wanted to create a safe haven for what I call "ultra-sensitive" people. I'm definitely one of them -- and have been told my entire life that "I'm just too sensitive." Well, now I realize sensitivity is a gift -- one that blesses us with tremendous compassion for others. But it can also be a burden -- because we feel things SO very deeply. And are easily upset by conflict -- and getting upset makes our symptoms worse.


With that said, was just wondering how my fellow sensitives are doing/coping? Let's support each other, ok?

[maryok]

Just wanted to create a safe haven for what I call "ultra-sensitive" people. I'm definitely one of them -- and have been told my entire life that "I'm just too sensitive." Well, now I realize sensitivity is a gift -- one that blesses us with tremendous compassion for others. But it can also be a burden -- because we feel things SO very deeply. And are easily upset by conflict -- and getting upset makes our symptoms worse.


With that said, was just wondering how my fellow sensitives are doing/coping? Let's support each other, ok?

[maryok]

Just wanted to share an interesting experiment I'm currently trying. I mentioned last week that I would be seeing an MD with a specialty in Ayurveda (ancient herbal-based medicine from India). Although he had heard of Morgellons, I was his first Morg patient.

It was the absolute best doctor experience I've ever had. He sat with me for an HOUR, listened intently to everything I had to say -- and was the first of my 11 doctors who was actually willing to look at my skin. Clear as day, he saw the worms underneath -- can't tell you how incredibly validating this simple act was for me.

I had given him the protocol and he told me he'd be happy to do whatever I wanted -- ie, continue on the meds in the protocol, prescribe the herbal equivalents for all 4 parts of the infection (bacterial, viral, fungal and parasitic), or both. After giving it some thought, I decided to try the herbal route alone, given the success I had already been experiencing from the other practitioner.

When he found out which Ary herbs I had taken previously, he was somewhat surprised that they had helped me so much -- apparently they were they absolutely mildest herbs available . Which explains my slow progress and the 4-month long herxing I had experienced. He custom mixed a blend of 7 different Indian herbs (have no idea their names) and gave me capsules to put the herbs in. I am taking 2 capsules, 3 times a day.

Granted, it's an experiment, and the final results aren't in but my remaining symptoms are RAPIDLY dissipating. The herxing is still there -- and believe me, it's no picnic. But if this does work, I will come out of this not only healed of my Morgellons, but with a shiny, happy immune system as well. I was only 3 weeks into the Rx protocol but given how sensitive I am to medication, I thought I'd try the herbal route again. If this does not work, I'll go back on the pharmaceuticals.

I asked if I could add him to our doctor list but he wants to wait to see how I progress first. Anyway, just wanted to share this hopeful experience. Who knows -- maybe someday soon we'll have plenty of successful options for beating this thing? Fingers crossed!

[maryok]

Just wanted to share an interesting experiment I'm currently trying. I mentioned last week that I would be seeing an MD with a specialty in Ayurveda (ancient herbal-based medicine from India). Although he had heard of Morgellons, I was his first Morg patient.

It was the absolute best doctor experience I've ever had. He sat with me for an HOUR, listened intently to everything I had to say -- and was the first of my 11 doctors who was actually willing to look at my skin. Clear as day, he saw the worms underneath -- can't tell you how incredibly validating this simple act was for me.

I had given him the protocol and he told me he'd be happy to do whatever I wanted -- ie, continue on the meds in the protocol, prescribe the herbal equivalents for all 4 parts of the infection (bacterial, viral, fungal and parasitic), or both. After giving it some thought, I decided to try the herbal route alone, given the success I had already been experiencing from the other practitioner.

When he found out which Ary herbs I had taken previously, he was somewhat surprised that they had helped me so much -- apparently they were they absolutely mildest herbs available . Which explains my slow progress and the 4-month long herxing I had experienced. He custom mixed a blend of 7 different Indian herbs (have no idea their names) and gave me capsules to put the herbs in. I am taking 2 capsules, 3 times a day.

Granted, it's an experiment, and the final results aren't in but my remaining symptoms are RAPIDLY dissipating. The herxing is still there -- and believe me, it's no picnic. But if this does work, I will come out of this not only healed of my Morgellons, but with a shiny, happy immune system as well. I was only 3 weeks into the Rx protocol but given how sensitive I am to medication, I thought I'd try the herbal route again. If this does not work, I'll go back on the pharmaceuticals.

I asked if I could add him to our doctor list but he wants to wait to see how I progress first. Anyway, just wanted to share this hopeful experience. Who knows -- maybe someday soon we'll have plenty of successful options for beating this thing? Fingers crossed!

[Tootsie]

Yep I'm definitely an ultra sensitive type! Sometimes I feel i really dont belong here on earth, its just too harsh for my soul to take.

Ive been very sad with all thats taken place here but sometimes thats what causes good changes to come about so Im trusting in whatever happens is in everyones best interest even though it may not appear that way at first.
Always look for the silver lining! We all have a place in the universe and we might get shifted around but need to trust that everything is in perferction and in Gods hands.
Love, Frisk

[Tootsie]

Yep I'm definitely an ultra sensitive type! Sometimes I feel i really dont belong here on earth, its just too harsh for my soul to take.

Ive been very sad with all thats taken place here but sometimes thats what causes good changes to come about so Im trusting in whatever happens is in everyones best interest even though it may not appear that way at first.
Always look for the silver lining! We all have a place in the universe and we might get shifted around but need to trust that everything is in perferction and in Gods hands.
Love, Frisk

[maryok]

Friski -- I know EXACTLY how you feel! I often feel I don't belong down here either -- I've always felt "different" somehow, kind of like a round peg in a square hole. I guess that's why I tend to spend a great deal of time "up there" so to speak. Which pretty much explains why I'm not very grounded

Another word for us is "empaths" and boy is it a double-edged sword. When I'm talking to someone -- whether in person or "virtually" -- I tend to absorb their energy (especially pain and anger -- ouch). I have a hard time in crowded places like malls cause I pick up EVERYONE's stuff -- which also makes being on the message board during a busy time kind of tough. That's why I tend to come here at night when it's less "crowded."

And I totally agree with what you said -- the last few days here have been really painful but I'm kind of trusting the process. I guess it's like Morgellons itself -- sometimes things have to get worse before they can get better? Glad to know there's someone else out there who's also "just too sensitive." We should definitely talk!

[maryok]

Friski -- I know EXACTLY how you feel! I often feel I don't belong down here either -- I've always felt "different" somehow, kind of like a round peg in a square hole. I guess that's why I tend to spend a great deal of time "up there" so to speak. Which pretty much explains why I'm not very grounded

Another word for us is "empaths" and boy is it a double-edged sword. When I'm talking to someone -- whether in person or "virtually" -- I tend to absorb their energy (especially pain and anger -- ouch). I have a hard time in crowded places like malls cause I pick up EVERYONE's stuff -- which also makes being on the message board during a busy time kind of tough. That's why I tend to come here at night when it's less "crowded."

And I totally agree with what you said -- the last few days here have been really painful but I'm kind of trusting the process. I guess it's like Morgellons itself -- sometimes things have to get worse before they can get better? Glad to know there's someone else out there who's also "just too sensitive." We should definitely talk!

[hilly]

Hi yes MaryOK you hit the nail on the head then... sometimes things have to get worse before they get better. I'm afraid I'm definitely one of those 'super over-sensitive' types. I can't bear sadness and hurt to ANYONE or anything, and it kept me awake last night... the main person has said 'sorry' and it's now surely time for forgiveness (which I know is sometimes as hard as saying sorry) and trying to forget, and the HEALING has to start. good bye to nasty hurt and pain.... come on chaps... sorry if I'm bossy, I'm not really, just English !!!

Today is Monday, a new week. A week for Morgellons, BLOODY morgellons .. we can all just talk about that, hows it going, any new news, any thing that has helped or not.
I tell you whats been good for me. I bought some wonderful oils when I was in Egypt. Sandlewood, attar of roses, lotus oil and eucalyptus.... my room smell like heaven and it makes me feel so good, and the b.....s hate it I've had less of the pricking etc..... I only wish I could give you ALL some to make you ALL feel better.
Have a great and happy and helping week.... please... and forgive me for ranting on. ;>))) we're going to be happy and better now...... xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx Hilly

[hilly]

Hi yes MaryOK you hit the nail on the head then... sometimes things have to get worse before they get better. I'm afraid I'm definitely one of those 'super over-sensitive' types. I can't bear sadness and hurt to ANYONE or anything, and it kept me awake last night... the main person has said 'sorry' and it's now surely time for forgiveness (which I know is sometimes as hard as saying sorry) and trying to forget, and the HEALING has to start. good bye to nasty hurt and pain.... come on chaps... sorry if I'm bossy, I'm not really, just English !!!

Today is Monday, a new week. A week for Morgellons, BLOODY morgellons .. we can all just talk about that, hows it going, any new news, any thing that has helped or not.
I tell you whats been good for me. I bought some wonderful oils when I was in Egypt. Sandlewood, attar of roses, lotus oil and eucalyptus.... my room smell like heaven and it makes me feel so good, and the b.....s hate it I've had less of the pricking etc..... I only wish I could give you ALL some to make you ALL feel better.
Have a great and happy and helping week.... please... and forgive me for ranting on. ;>))) we're going to be happy and better now...... xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx Hilly