I can't go out like this!!!
Morgellons-Morgellons Disease

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Old February 28th, 2010, 06:33 PM
Eris is offline
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Default I can't go out like this!!!

I can't work with people anymore. I'm locked in my house 24/7, going out covered up at night to get the supplies we need. I feel like this is straight out of a movie, me creeping around for food, scratching to survive, this shyt is crazy!!! I can't get a normal job, even when I use makeup (I went out and spent hundreds on foundations to cover up this mess) it itches like hell, and you can still see the lesions, even the spots it left behind. I am now wondering whats next?!
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Old March 1st, 2010, 06:37 PM
jsim1 is proud of the green initiatives my state is making.
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Quote:
Originally Posted by Eris View Post
I can't work with people anymore. I'm locked in my house 24/7, going out covered up at night to get the supplies we need. I feel like this is straight out of a movie, me creeping around for food, scratching to survive, this shyt is crazy!!! I can't get a normal job, even when I use makeup (I went out and spent hundreds on foundations to cover up this mess) it itches like hell, and you can still see the lesions, even the spots it left behind. I am now wondering whats next?!
Go to a doctor. Get some blood work done. Find a sympathetic dermatologist. Call the CDC. And do not give up. I know exactly how you feel. Luckily, some of my symptoms have abated. However, I am a walking psychopharm drugstore as the bizarre things that have become daily occurences in my life are considered delusional. In what world is any of this fair or humane? Hang in there and have faith. Guard your health and your privacy, as they are closely correlated. Just my two cents.
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Old March 1st, 2010, 06:47 PM
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Go to a doctor. Get some blood work done. Find a sympathetic dermatologist. Call the CDC. And do not give up. I know exactly how you feel. Luckily, some of my symptoms have abated. However, I am a walking psychopharm drugstore as the bizarre things that have become daily occurences in my life are considered delusional. In what world is any of this fair or humane? Hang in there and have faith. Guard your health and your privacy, as they are closely correlated. Just my two cents.
I was contacted and given a local doctors name. Girl, I ain't worried about my privacy--I don't have the spirit of fear, because God didn't give it to us, that comes from the enemy. I stay prayed up, and any weapon formed against me will NOT prosper. Thanks for the input. I FULLY understand the daily occurences--THEY ARE NOT DELUSIONAL. What may not be accepted is the TRUTH, and the truth of the matter is this is much bigger than skin lesions. Jesus is coming back soon, that's all I have to say about that. Be truly blessed child. I appreciate your input!!!
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Old March 1st, 2010, 06:49 PM
jsim1 is proud of the green initiatives my state is making.
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Originally Posted by Eris View Post
I was contacted and given a local doctors name. Girl, I ain't worried about my privacy--I don't have the spirit of fear, because God didn't give it to us, that comes from the enemy. I stay prayed up, and any weapon formed against me will NOT prosper. Thanks for the input. I FULLY understand the daily occurences--THEY ARE NOT DELUSIONAL. What may not be accepted is the TRUTH, and the truth of the matter is this is much bigger than skin lesions. Jesus is coming back soon, that's all I have to say about that. Be truly blessed child. I appreciate your input!!!
Hats off to you. I guess it is true that you covet that which you have the least of.....privacy. People are crawling all over my life. I'm quite sure that someone has broken HIPPA.
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Old March 1st, 2010, 06:59 PM
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Hats off to you. I guess it is true that you covet that which you have the least of.....privacy. People are crawling all over my life. I'm quite sure that someone has broken HIPPA.
Child let them crawl, that's a blessing. Don't let no one over step their boundaries though, now that isn't cool. That's why you feel so serious about your privacy--because people are inquisitive about your Morgellons, child that's a good thing. I can picture men coming in white plastic suits to my house checking me out, lol. I wouldn't be surprised. I'm not afraid because I put God first. 1 Corinthians 10:13 says: There hath no temptation taken hold of you but such as is common to man. But God is faithful; He will not suffer you to be tempted beyond that which ye are able to bear, but with the temptation will also make a way to escape, that ye may be able to bear it. God will not give us any more than what we could handle, He knows we can handle it, and in the end He will give us a route of escape.
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Old March 1st, 2010, 11:16 PM
fracty is grief stricken - and FURIOUS with the doctors who said this illness is imagined!
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I don't know what to tell you Eris. But what JSIm mentioned is good. I think as you start getting help, hopefully that aspect will ease up. But this illness is very isolating.

I look so ugly and weird now. One boss I have in particular, who never knew me before, is so utterly vicious to me. And it is obvious it is because of my looks.

I am not quite as weird looking as when I first started getting sick. But I have gained a good 40 or 50 pounds, my hair is finally starting to get back to normal, but still very weird looking. I threw out my hot iron, and the one I kept I am afraid to use in case it is stll infected. The shape of my face is weird,... I think from all the fat. I never wear makeup or anything now. And my clothes are just the same few ugly poly outfits, never anything cute.

It kinda serks, but I try to make it into an exciting adventure in my mind, like, "Oh good, now I get to see how ppl treat me when I am super ugly. Now I get to see who is really a friend. This is great." lol.. well, maybe not that great. but that is what I tell myself.

Wish I was more help for you.
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Old March 1st, 2010, 11:32 PM
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Fracty, I love your positive attitude!! You made me laugh, cuz I look like a little hobo when I goto work, no makeup, hairs all frizzy, Oh well huh, screw 'em all, we have each other, and I think you all are beautiful!!!! And I would be honored to give you'al a great big hug!
Eris you are gonna get through this baby!!! call me anytime!, I am livin proof that God's amazing gift of herbs heals, the kids and I are like a total 180 from where we were, people think that I'm not even sick anymore, like I finally got over my delusions or something, who cares, I'm feeling good enough that I'm starting to want to do my hair, and put on make-up, start walking/running again, How awesome is the LORD!!!!
Love and Blessings, kc
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Old March 2nd, 2010, 08:00 AM
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I look like a Meth Ho with white teeth

I hope to get my hair styled soon, before I get any uglier again.
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Old March 2nd, 2010, 08:26 AM
tcmgpt13 is "status viatoris."
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I have had lesions on my face, but I used a product called sunspot es and sometimes I used curaderm bec 5. Fortunately these products allowed the skin to heal without really visible scars. The curaderm is very expensive, but at times I had to alternate it with the sunspot es. Curaderm is used for skin cancer and the other for those brown spots which sometimes develop on the skin as we photoage. All I can say is that it worked for my morgellons lesions in these areas. And the critters hated both of these products. I have scars in other areas like arms and legs, but these are easier to cover with clothing. Right now, no new lesions and praying it stays that way this spring. I usually have one or two by now, so crossing fingers that my TCM formulas work to make it hard for these fellas to reproduce in the skin. When I treated the lesions in the past, I was always on some sort of herbal formulas as I think this helps the external treatments to work better and faster.
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Old March 2nd, 2010, 04:33 PM
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Quote:
Originally Posted by fracty View Post
I don't know what to tell you Eris. But what JSIm mentioned is good. I think as you start getting help, hopefully that aspect will ease up. But this illness is very isolating.

I look so ugly and weird now. One boss I have in particular, who never knew me before, is so utterly vicious to me. And it is obvious it is because of my looks.

I am not quite as weird looking as when I first started getting sick. But I have gained a good 40 or 50 pounds, my hair is finally starting to get back to normal, but still very weird looking. I threw out my hot iron, and the one I kept I am afraid to use in case it is stll infected. The shape of my face is weird,... I think from all the fat. I never wear makeup or anything now. And my clothes are just the same few ugly poly outfits, never anything cute.

It kinda serks, but I try to make it into an exciting adventure in my mind, like, "Oh good, now I get to see how ppl treat me when I am super ugly. Now I get to see who is really a friend. This is great." lol.. well, maybe not that great. but that is what I tell myself.

Wish I was more help for you.
Yeah its very isolating. I'm scared to go around people sometimes, for fear of spreading this. I look homely as well, when you don't feel good it shows. On top of all this, I cut my hair off at a fine time, the lesions appeared right after I chopped off my hair, so you know I look a hot mess. Be blessed.
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