Who works outside the home?

[kool-aidman]

Sadsack,

no i didn't know that prayer but i'll well deffently have to use it, some time times are realy bad, so prayer is always the best way to go,

Saint Mchael the Archangel defend us in battle. Be our protection against the wickedness and snares of the devil. May God rebuke him, we humbly pray; and do thou, O Prince of the Heavenly Host- by the Divine Power of God- cast into hell, Satan and all the evil spirits, who roam throughout the wold seeking the ruin of souls.
Amen

[Sadsack]

Kool -
That's a great prayer...and I love St. Michael, the Archangel. Shortly after Morgellons moved into my home, I bought an icon of St. Michael and it is hanging in my dining room. There is a shrine - St. Michaels - that I go to every now and then in the old part of this little town.
SS

[jonsi]

I work outside of my home! And I am a single mother of a 10 year old daughter.

Believe me, it was tough having to get up in the mornings to get her off to school and then have to get through the panic/stress attacks as soon as she walked out the door so I could get my act together to make it to work each day.

I went through serious depression, suicidal thoughts, panic, stress, crying, screaming, hitting walls... ... ... I could barely walk, had no strength, and the brain fog was awful. Should I mention the horrible lesions, biting hair, black specks and glitter?

Conventional medicine, a psychiatrist, anti-depressants did NOTHING for me.

I've posted a lot on total body modification (tbm) and kenesiology, organic foods and a healthy diet, lymphatic massage, power of positive thought and prayer (meditation), and baby steps.

Everyday I say my "prayer", asking to be surrounded by the white light of the holy spirit (prime source, God, Jesus...) and to be protected from any negativity and darkness that comes my way. I smudge my home with sage to get rid of negative energy.

Among other things, this "Morgellons" does feed upon fear. If you watch a lot of tv, please don't listen to the commercials or believe the negativity/fear that the news is telling you.

It is much better to turn on some good music and center on your own creativity and self worth. Dance and sing!

HMMMM. I got carried away there, but I just want to share what has helped me.

In the white light,
~jonsi

[Sadsack]

Jonsi -
Thank you for responding. It is truly humbling to hear what people who have children and have to work go through. And all that with virtually no support in most cases.
You have much respect from me for carrying on in the midst of this unimaginable nightmare.
SS

[jonsi]

SS,

Thank you for your support!

My mom has believed me from the start. In fact, she is the one who discovered what Morgellons was while searching the internet looking for my symptoms (I had no idea what was wrong with me at that time).

Maybe that is the problem with going to work each day? At first my co-workers saw how sick I was (mentally & physically). But after I started showing my co-workers the black specks, the glitter, the stuff coming out of my lesions, the moving hair, etc... they discarded me and said that if a MD said nothing was wrong with me then I must be delusional and making it all up. They hated the smell of eco-vie (and bug-arrest, even though it has no odor) and I had to sneak in at night to spray the office to get rid of the fibers.

It was so depressing to go to work every day. I lost a lot of friends too... Some of my friends are starting to realize "Morgellons" is real.

This MDR site has kept me sane!!! Let's keep working on finding out what "Morgellons" is. We deserve answers!

In the white light,
~jonsi

[Jo]

We do owe it to ourselves to find out the truth Jonsi, great you're here again. What a strong chick you are to educate your work people!

I sit in an office of 30 women - average age is probably 50. We hot desk around and when I started, I examined their monitor screens and identified a number of morged up ones with 'egg's and fibres on them. One of them belongs to an ex hairdresser who gave up cuz of derm problems. Some of they cars are morged up too.

My manager said I looked very unwell when I started. I was LOL.

Psychological I've seen alot of improvements - more positive outlook, expanded world.

Physically, its mixed. Heaps more energy, on the down side I've started getting lesions, after 7 years of not having them.

I truely think that God wants morgellons exposed.

Jo xxx

[Seasprite]

keep in mind, people who are on here are a self selecting group who have TIME enough to go online. There are others who don't have the time because they have to work.

My friend who has this, works two jobs.

I already had a disability and was not working a regular job, but I volunteer about 15 hours a week at a nonprofit in an office. lately i have not had the energy to do that much, and i even fell asleep on their couch once!

[jonsi]

Hi Seasprite,

You are correct that we are a self-selecting group who have the time and the means to go on line. After my daughter goes to bed is when I have time to sign on. This site has been my life line.

I would never gotten a computer to go online to reach out to the "Morgellons" community it it weren't for my mom. We need to talk about this (however embarrassing at times) with our friends, relatives and co-workers.

By the way, my co-workers still don't believe me and think that it is all "in my mind". As mean as it sounds, I can't wait to say "I told you so!". I guess it will take the media to confirm the reality of "Morgellons".

In the white light,
~jonsi

[kiz730]

I not only have to get up and force myself to work everyday, but I have to deal with the personal guilt that I could be spreading this horrible illness to others through my work. Unfortunately, the only job I have been able to hold since the appearance of my symptoms 2 years ago is in a restaurant, and even there I struggle everyday to to keep my job without anyone knowing what I am going through. My manager's frustration with me grows everyday as I forget orders, sleep through shifts, drop and break dishes, and avoid contact with food or beverages (ridiculous for a food server/bartender!!!) Last week, my symptoms were so bad that my arms were painfully numb from my shoulders to my fingertips and I wore ace bandages on both arms to cover the lesions on my arms. It was difficult to cover my black eye from a lesion located just beneath my eye, which of course attracted questions from EVERYONE inquiring what happened to me. I fear that my coworkers suspect that I am in an abusive relationship, for I constantly have to make up stories to explain the bandanges or wounds I cannot hide.

I am barely able to make it through an entire shift most days before I am sent home because i am too sick or costing management too much money due to my mistakes. But I have no other options to make it financially if I lose this job and I cry everyday on my way home from work because I know that may have been my last day of work.

On the bright side, work has been a blessing on most days because it forces me to stop obsessing, to stop crying, and to put a smile on for my customers...because even if it's is fake, it's still a smile. Most days i don't want to get ready, or look in the mirror....but work makes me face my reflection and gather up the confidence to face society as well. I struggle everyday to get out of bed and move past the millions of insecurities caused by this horrible condition....but I have built up the skills for self-motivation and socialization each time I work through the pain and depression. I don't know how much longer I will be able to continue working ....but somedays, the only time I feel somewhat like myself gain is when I'm at work with my friends.

[tcmgpt13]

Hello Kisz. I see you joined last November, but I know I have never welcomed you to MDR. So first I would like to say welcome and I am glad you have shared your story which shows the concerns you have with your job.

There is at least one member here, Dragonfly, who was able to get social security disability benefits. She won her case using Morgellons as a diagnosis. Others are trying with chronic fatigue. If you are unable to work this may be the route you will be forced to take. You need to find a lawyer who is sympathetic to take your case and there is at least one who is. I know that Dragonfly documented her case carefully and had the help of Trish Springstead who has been working with those who have Morgellons. The lawyer she used is accepting other cases now on contingency.

Dragonfly's post after she won her case:

dragonfly 1 & 2 (permalink 15)

Here's a post from a member which shares the name of the law firm (permalink 1) who handled dragonfly's case:

U.s.: Been Unable To Work Since Morgellon's/want $?!!

Originally Posted by Enviro Girl

Social Security Disability Income/SSDI

If you are/were disabled from Unexplained Dermopathy A.K.A. Morgellon’s Disease, there is a national law firm that recently won a landmark case in Ocala, Florida:

John Weil, Esquire of the firm Crowe & Parody, LLC working with Trisha Springstead, RN on behalf of one of her patients recently won a retroactive settlement that paid SSDI benefits for years past!

We’d like to thank Judge/Justice Lantz McClain for saying Morgellon’s 4 times in court – that is progress unacknowledged and mistreated victims have been awaiting, for years!!!

Cases may be pursued in each & every U.S. State, Crowe & Parody has set up a hotline:

Ask for Yelinda (yo linda) 1-877-261-1947 x 8927

No up-front fee, they take a % IF your case wins.

If you have copies of your medical records, photos of extractions, lesions, sores, documentation/costs of treatment protocols/things prescribed over the years, call Yelinda and see what they can do for you.

You must have been employed at the time of disability/good work history prior and debilitated/unable to work due to ‘Unexplained Dermopathy’ A.K.A. Morgellon’s Disease.
*Must have been off work due to Morgellon's for at least one year.*
**PLEASE when calling there, stay calm, she will ask you the questions. No chemtrail talk or nanobots, please. We want to keep this law firm and do not want to scare Yelinda away or get them in the middle of a governmental quagmire. We want justice for sufferers, the more justice we receive for you, the more validation for everyone.**

Thanks and Congrats to Trisha, who’s been a warrior for and caregiver to Morgies, for years! Thanks to Crowe & Parody for going to bat for us!!!