MDR Update

[Sadsack]

Originally Posted by janedoe

i really like this site, im just sick of people trying to shove spanningers thereas down my throat!! i never realized this was HER site....if it is, then see ya.. if its not, then ill stay.
im doing way better.. without her quack thereos

Jane -

It is NOT "Staninger's site" any more than it is Carnicom's, Steve Frye's, or anyone other than "Franky's". There are different theories, that's all. If you aren't interested in theories, skip them.

Nobody's trying to shove anything down your throat. Pick and choose, and leave the rest, as has been said several times in this thread.

SS

[Franky]

Sadsack's advice here I couldn't agree with more. It’s a big site now guys; there are some folks with some really hard worked on theories on morgellons. I mean we are all adults here, quite simple ignore the threads with the theory you don’t agree with, if it bothers you that much.

I know people are sick here and this morgellons disease has strange effects on different people, but when debate gets into personal attack, that’s when things need to be ended. I believe in lots of freedom speech and personal expression, but in particular with these types of sites, you need to have some guidelines/rules. I really hope I don’t sound preachy here, I don’t mean too, just trying to get us all on the same page at least.

I have never mentioned this before, but I have been already threatened with lawsuits twice in the few years this site has been up already.

Also if anybody has any suggestions to help out the site, please shoot an email at morgellonsmdr or a PM, I am always looking for ways to improve the site.

Anyhow, I thought I saw a feature where you can click on people you don’t like reading and the site would automatically ignore their postings. Is that something you would like installed? Please let know.

[Doc Holliday]

Originally Posted by Robin

Hello everyone!
Franky u are an admiral guy! and i've always appreciated this site and the help i really needed at the time if it wasn't for your site they may have admitted me by now! lol i've met some really important people on this site and thank GOD for that! i will behave i promise! i've missed everyone!
XXOO
Robin

>>>>>>Robin ,....I miss you too!....where have you been darlen?? .......thanks Franky!.......didn't know about the law problems,....hope all is well in that department,....you have been great to all of us,. and more then fair,...the law issues! ..is it because of some thing that was posted on site??,....if so,....let us know about any rule on that,....law problems is not what you need fer sure,.....and I would hate to think, it may have anything to do with one of our post. .....Sincerely:....Doc

[norwood12]

My sister is a heavy meth user and has started freaking out about having worns coming from her hands and feet. Of course we don't see anything!!! All I say is METH is killing this country!!!!!!!!

Originally Posted by Frankybme

Number one, we seem to be getting an influx of very angry members and people with personal agendas yet again. I have been very easy going for a long time, I understand we are dealing with sick people and I really feel for you. But being sick does not excuse crude, hostile and even violent threatening language here on the site.

I for one don’t like it; it makes you look less credible and also there are huge legal liability issues as well. Besides possibly losing the site, people can get in unneeded trouble. I won’t stand for that for myself and others here.

Besides that the site was never meant for that, the site was for people to just get together so they did not feel like they were all alone in the world, like my friend felt. It wasn’t meant for a place where you battle the world from; there are plenty of other forums for that in the net.
This one of the reasons why I love the net, there is something for everyone on it.

Number two, right now I am working on some fair rules/guidelines which the site is lacking. Also any old or new members who can’t act in a decent adult manner will be asked to leave. I really don’t care if the site is left with 5 nice members, it will be my pleasure to keep the site up for them.

I also want to thank Carla for the all the help she has done for the site pretty much alone every since I have been hit with a string of bad luck, trust me it’s been very hard on her. But I will be helping and so will a new mod soon. And really all the members should be helping each other as well to keep peace here.

Finally I get so much email on the default account here; I wanted to offer a new email in particular for the members. Please use the email for major problems, if you want to get in touch with me and such, I will look there everyday. I am sorry if I seem a bit harsh but I have to look out for the longevity of the site and the safety of the members.

morgellonsmdr@hotmail.c*m

[2wellness]

Hi to all,
I am very new to anything about forums and not sure what to do. It was recommended that I intro myself and so here it is.

Now I want to start reading and hopefully become enlightened with some new info.

Thanks. Do I have to sign this?
2wellness

[janedoe]

you all forget, I HAVE THIS TOO!!! im broke out like crazy right now, everytime i heal, i have to get back intohome repairs KNOWING damn well that im gonna get sick!! I NEVER ATTACKED anyone...but whatever, if askign questions makes me a bad guy then so be it.. but dont forget that i got this crap. im stressing eveyday.. i have to battle my dad, and live in a house that is getting me more and more sick, but i wont get better until the house is clean. or until i die trying. letely, it doesnt matter to me either way.. i HATE this damn morgellons!! i hate it, and every son of a ***** that my dad has opend his big mouth to about me, has to ask me dumb questions and treat me like i wanted this!!
i want to not have this anymore. i cant stand the smell on myself, i hate leaving a room and hearing people cough. WHAT IS WRONG WITH ME? WHATS WRONG WITH YOU GUYS? I HAVENT BEEN SHUNED BY DOCTORS, ONLY BY YOU GUYS!! and everybody that comes over to look at the freak..its a damn good thing i DO have a doctor on my side or my dad probably would have thrown me out or i would have just blown my head off like myexhusband just did.
it dont even matter...its not like anybody ever had the answers, though i did gets some good tips and advice.but mostly, i walked into another big old stupid drama scene.
'THANK YOU FOR YOUR SUPPORT'.
doesnt help my low self esteem or my view on poeple suck. lways have always will..if you pay them, they will come. otherwise, your *** out on your own.so get off your high and mughty horse, i got this stupid thing, and i want it gone.im tired of making people around me sick,cough and gag . im sick of having to patch myself up just to leave the house. i go thru so many boxes of bandaid and fabreeze, baby powder and body sprays, i just want to find something that works.. FOR ME.. 'one size does not fit all'
i got jumped on for asking questions. i fought back, and i lknow ill be hated forever.its like everyone tells me i should give up, its a losing battle with doctors, well thats all that has worked for me, none of these 'support sites' have...
face it, without money, nobody cares about anything anymore.. im wondering why in the hell i should

[Bustercat]

I am glad you stuck you neck out emotionaly for us morgies. In one vain it was a little harsh to a new commer, but I completely understand why rules need to be spelled out. Emotions can get so tangled with this harsh unforgiving disease. We so need to walk in others mocassins, I show up out of absolute lonley, frightening reality's trying to cope,and find some sanity sharing some of the scary daily observations. I look forward to a close walk with you folks.

It takes a considerable lenght of time before morgie suffer's let you into their santuary, because they have been so abused by proffessionals. It takes a great deal of patience on the newcommer part and the old timers, in the group. Its like group therapy we do need a moniter, and thats ok.Thanks for posting. Bustercat

[ladycolorado]

I understand what you say and agree Franky. I am sorry if you have had a hard time and pray things get better. I wish everyone well here and say my hellos.

(LC)

[cyanide2]

Hello everybody, im just introducing myself