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[jonsi]

Not another one!?!

~jonsi

[agneslewisinfo]

Thanks. I have had three people email me. I thought this would be the best forum to try and find people who wanted to participate in a survey. I really am only asking for information. I am going to try other sites as well but thought this one may be the best to start.
I don't wish anyone to suffer from this condition. I am not selling anything, I do not want anyone to change their current treatments. I only want to know some simple basis information about their lifestyle including nutrition, symptoms, etc. There are a couple of medical questions but they are non-invasive and optional. I do not claim to have all the answers, but to actually be 100% and be able to replicate this in 3 other people has given me a strong starting point to understanding this disease, and move forward with the investigation.
I refuse to be rash and post up the theory all over the internet as some magical cure and than spend all my time defending my theory rather than developing it. Trials would come only after further investigation. Please email me. I am agneslewisinfo on gmail. Thank you.

[agneslewisinfo]

Originally Posted by jonsi

Not another one!?!

~jonsi

I am only trying to obtain information. I do not claim to have some magical cure. Please, all I ask for is information. No money, I am not selling anything, I just need to further investigate. Please and thank you.

[agneslewisinfo]

Originally Posted by fracty

Agnes,

If you are reading this, please know that 6500 people have not viewed your post. You are misunderstanding how to read those numbers. You are probably reading the views of the thread from the beginning, And although I did not check, it probably has been there for a year or more.

At any rate, i sent you an email so feel free to send me more info if you would like.

Thanks.

Thank you for your response. I have figured out the site now. Sorry for the confusion. I truly only want to help. I figured there would be some backlash that is why I am not posting this everywhere claiming to have some cure-all. I just want information. Please and thank you.

[Kritters]

Agnes is looking for people to help and has asked people to contact her so she can ask them questions. I think this is foremost the reason she posted and not to just come here saying she has the cure.

Why not contact her?

Kritters

[fracty]

...Sorry for the confusion. I truly only want to help. I figured there would be some backlash that is why I am not posting this everywhere claiming to have some cure-all. I just want information. Please and thank you.

Ya, I am sorry about the reception you received. Thanks for trying.

I know if I had a solution, but did not have M, I would probably just say forget it after some of the receptions I've seen. Why should anyone stick their neck out? It's attack first, find out facts later.

[tcmgpt13]

I think most people feel uncomfortable sending information to someone they do not know at all who suddenly appears from nowhere on the forum. Those who have Morgellons are understandably more wary about claims for solutions than might be other groups of people.

No one knows who Agnes Lewis is, not really. This may not even be her name. I do not think that respectful questioning of motivation and asking for more detailed information is attacking anyone. It is a reasonable request for more information from Agnes and has been made by others on this forum. I notice that not much more information than was first given has been posted by Agnes here. This new poster can say she is not selling anything, but this may or may not be true. Also after saying she did not want to post everywhere on the forum, this person has posted on this thread multiple times and has also posted on another thread she started.

Ditto, Jonsi

[fracty]

I agree about concerns for privacy. I won't even use the grocery store (AKA tracking) cards.

My sadness here was not about questioning. I had questions myself that I handled a different way. My sadness was about the way the questioning was handled (basically the rude inferences made against her).

Guilty until proven innocent.