1. State you reside in - Texas
2. Suburb
3. Do you live on a lake, by the ocean or pond? When symptoms emerged lived next to big creek. Spent alot of time in Galveston 1981-1987 big blobs of oil floated to shore from offshore drilling. We also ate the fish we caught when fishing at the shore - don't recommend that anymore.
4. Do you have city or well water? City water but drink bottled
5. Do you live in a heavily treed area? Yes
6.& 7. Age of Onset & Number of years affected - Cant decide what was the 1st real symptom. Kidney venious malformation in 2002 @ 42yrs of age or after car accident and 1st lesion emerged in 2006 after MRI. Tick bite in 1974 only rememberance of ticks. Friends pulled out a microscope Halloween of 2009 and we figured it out ourselves, before then thought it was scabies or birdmites. At the time I was just having itching a few lesions. Did not start to see Fibers until 2010 then found fibers in urine, skin, hairbrush. Mostly after showering they come out of skin and look like fuzz ball and pull on it and has been as long as 8"
ND states have had for at least 10 years or more so no telling how long really affected, after having Mono in 1974 I got used to Chronic Fatigue. 2010 Blood would show up to 3 parasites in 1 blood cells, very thick like used motor oil. Now better after taking enzymes.
8. Any other family members affected? No
9. Your occupation at onset? Administrator
10. Do you own pets - Dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Live in Texas and been to all the states and 9 different countries
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Yes
13. List your activities and hobbies - Camping, travel, eating exotic cuisine/sushi.
14. Have you used a public whirlpool or pool? Yes and spent a week at the Guadaloupe/Comal River/Shlitterban in 1996 and after had episode where 1/2 my hair fell out after coming home.
15. Please provide your medical history - Mono in 1974, babies born 1982, 1986, blood in urine almost every other doctor visit and never explained, Kidney artioigraph for venious malformation in 2002, car accident 2006 broke pelvis, ribs, shoulder had MRI, 3 Cat Scans, 2 lesions and then started itching and felt like being stabbed with toothpicks in my calves. 2007 Fibromyalgia.2009 all hell broke loose......... Spring 2011 more under control and more predictable. Symptoms escalate at a full moon and when TOM visits.
16. Do you smoke? No
17. Any medications you have taken or are taking? Would take 5 pages to list them all: 1st tried NutraSilver Dec 2009-Feb 2010 but I turned into 1 big purple black bruise, tried several other internet remedies and then found 2 great ND's who got me on the right track with Cowden Protocol; Transformation Enzymes; Salt/Vit C; Borax, Baking Soda and 35% FGH202 in 1 liter water and drink 1 lter x 5 days then 2 days off; Zinc; Skin maintenance 2% iodine on new lesions seems to shorten episode, then use Morgone alone or mixed with Neosporin pain relief with a bandaid until it stops producing; Grapefruit seed extract and also mix into Palmers skin oil to coax out the debri and start healing up. Arnica Gel to help with the ones that turn blackish but only time will fade the really dark ones that look like blood blisters. When bad lesions the Salt/Vit C & Mucinex also helps to push out the lesions faster. Far Infrared suana 3x week (225.00 portable one off the internet not that expensive one this was what could afford and has helped, took 3x before my system would actually sweat, also helps lesions heal faster alternate with Ebsom salt and peroxide baths.
18. Do you drink more than 8 cups of coffee a day? No
19. As far as lesions, have you had more than 10 at a given time? Yes but they are all different. Some are pools of sticky liquid that dries and has consistancy of liguid nails, others silicone warts, some come out as green blobs then know need to take colloidal silver; some are like Pez Dispenser and these seed like things come out, and keep coming out.
20. What part of your body did the lesions start? Torso
21. Is there any area that they are most prevalent? If so, where - Arms, Face and Legs
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? Right - Also note I sleep on my right side (blood pools?)
23. Please list your current symptoms - Weight loss of 20lbs, brain fog, fatigue
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? Scabies
Been in treatment with 2 ND's for a year. Now much better and back to having lesions that are smaller and less frequent, fewer fibers. Still have a way to go. Taking CD57 test to check progress. 1st one scored 48 in April 2011, goal is to get it over 60 and stay there. Have not taken long term antibiotics.
Also note I am of German and Dutch descent - I do think DNA has something to do with suseptability. Texas has a large German population.......
Last edited by beebee; July 20th, 2011 at 07:39 PM.
Reason: Wanted to add
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