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Originally Posted by maryok Hi Franky,
I know you probably have an awful lot on your plate ... and I definitely don't want to dump any more on you. But I was just thinking ...
you have a really unique perspective on Morgellons, given that you don't have it -- but you understand us really well. What do you think of posting a little welcome note to visiting family and friends (like you do for newbies) -- perhaps mentioning why you were so moved to become involved in our fight? I just think they might be able to relate to you a little easier than they can relate to us?
It seems SO many Morgies are in a position where they not only have to convince doctors they're not crazy -- they also have to convince their loved ones. If we could invite them here, and they could be "greeted" by you, i dunno -- maybe it could help? Thoughts anyone?
P.S. And for the ones who already believe us ... maybe a helpful little do's and dont's check list on how to best support the Morgellons people in their lives? (I know my family really wants to help but they just don't know how.) Oh yeah -- and plenty of praise and acknowledgement for all the understanding they've shown. Afterall, I'm sure it's no picnic to be dealing with us these days! (Sorry Franky, my idea list keeps growing ...) |
Well Mary you hit it on the head with your post. I have had the unique perspective of seeing morgellons from different perceptions. But I always had a open mind and and more than happy to at least listen. The problem right now there are people out there who just refuse to even listen. Well i was hoping the whole site was a place you could send loved ones to learn from.