LC Congrats on getting a real diagnosis!!

That's really terrific and such a relief!! I'm glad you're doing so well also. Sounds like you're making huge progress!
Freeman, I searched for a holistic doc in my area and found one that not only had seen two previous patients presenting symptoms of morgellons, but he was glad to learn about any treatment protocols and was happy to help me. Of course he's "out of network" from my insurance plan so I had to pay him directly out of pocket, but it was worth it to start treatment with no travel. He hasn't done blood any work though, which Dr H does, so I'll still need to follow up with that. I'm on the waiting list to be called by Dr H and when I talk to them I'll decide if I drive up to see him or ask my doc to consult with him.
I found the holistic doc by searching my state on this site..
http://www.holisticmedicine.org/
Also, if you have a chronic disease clinic in your area, they may have heard of morgellons and be more open to treatment options or Dr to Dr consultation.
Hope you find some one to help your healing.
k