Hi Carla and All:
Many people who are ill have been frustrated by the CDC's apparent inaction; here are my thoughts from the view of a primary health care giver's point of view.
Even if there is a new disease, with a newly identified set of objective (vs subjective) criteria, many doctors are not educated on new diseases. Then if they are, they refer to the CDC or NIH or other normal mainstream webpages for reliable info; and, give the treatment that is recommended. The problem with Morgellon's is that the etiology is not yet pinned down. So it cannot be diagnosed with any criteria, either objective or subjective, and all health care givers want to keep their jobs and be able to keep their malpractice insurance and earn a living but they must adhere to standard diagnostic procedures to do so.
I am retired, but when I was working, I saw patients in the days when HIV was new and it was a health problem but the etiology was mysterious at first. Now we know it is a disease caused by a pathogen, and it can be diagnosed with a blood test, we know how to prevent it and there are treatments for it. That doesn't mean that before the blood test people weren't sick, it meant there was no way to easily diagnose the disease. After the pathogen was identified eventually things progressed and we have a test for diagnosis and treatments for the disease. Ditto for Lyme's Disease - it was discovered in the 1970's but it was not until the 1980's when we knew the etiology; it is due to one of three pathogens all of a single bacterial species caused by a tick leaving behind an unwanted guest. And so we're in the period where Morgellon's Disease etiology is unknown still.
The bad news is no one can control how fast progress will be made. The good news is that people can recover, and have fairly good health; some do get well and when then do so it is their own immune system that helps them to overcome this and other diseases. In the absence of drug treatment, the logical approach is to do things to support and protect your immune system. That's good advice whether the CDC has a protocol or not. I think they're slow, but hopefully they'll sort out the etiology, create a diagnostic procedure and then researchers can devise effective treatments.
Quote:
Originally Posted by carla  ...If you really believe the CDC are really there to help us then you should start reading a bit of their history.Your saying talk is cheap!! |