Please, try to understand, I have zero medical knowledge. I do know, that if someone "professional" tells me I simply am not suffering from what I (and others) can plainly see; they immediately lose my patronage on arrogance alone. Folks who automatically *** u ME that they already "know" without so much as a cursory glance are no longer welcome; nor tolerated in my world.
I have decided to no longer squander energy to try to convince anyone that Morgellons is real; I have to refocus my energies on projects that matter.
I have stumbled, quite by accident, into "Cooper Complete" vitamins; simply because I was broke and a teenager's two month regimen was marked down as closeout for less than four bucks. I would like to request folks who have earned their INFORMED opinions to please respond to me here; and I truly have zero interest in ANY "pluck from air" hypothesis.
That said; A year or so ago, I tried a non scientific vitamin hiatus, and then back dosing again for a second term. Each change was noticably worth the little effort. Did I feel noticably better; both physically and also as a mood elevator, with Cooper's "young adult" multivitamiuns solely because the B12 was literally 3,333% of RDA? Did that B12 directly help the decades of clinical depression? Why have other multis (with huge B12 %'s) seem to assist, but to nowhere near the same dramatic extents? There are some websites that cite studies alleging there is a direct corellation (of B12) to depression. Some $ELLER$ of B12 allege noone can fully benefit from B12 taken orally; that only allowing it to disintegrate under the tongue ("sub- lingual") will work unless by shots or IV. What is the real skinny on different multi vitamins, how B12 might affect Morgellons/ Lyme? Website refferrals will help me educate myself, but, (so far), I seem to be not so gifted in researching efficiently. Help with that is also good.
How much would the other plethora of supplements in the same multis made these differences? Why have other multi's not, also? Was I just so run down emotionally from all the symptoms, and depressed clinically to boot; that it was all just a coincidence? Answered prayer? Placebo's power of suggestion?IF so (?); would my poor diet, tons of overwhelm and anxiety; physically ill all the time make me so ripe for any reprieve that any sustenance out of the ordinary would have had dramatic changes?
I found out not too long after that (maybe two weeks?), that very (VERY)expensive lab tests allegedly demonstrated that my immune system and white blood cell count were each having issues. The highly acclaimed and charming expert cavalierly informed me the tests would not tell us which came first; which was a cause or effect or result of the other. In other words, after an out of pocket small fortune for plane tickets, lodging, etc; EVEN with the specific Lyme and Morgellons "expertise," the exhorbitant (and some proven as genuinely unnecessary) lab tests: we still had nada.
Again, shortly after, I stumbled into a rare and conscientious...dare I say it...out ...loud...a truly phenomenal...dermatologist. She gave me dignity, respect, compassion, attention to detail; she made me feel validated, human again and no longer nearly as disenfranchised. I am convinced that a mere long term dosage of Doxycycline has helped me more than anything (Google documentary movie; "Under Our Skin"). It's not gone, but no longer is constantly indescribably overwhelming. I still have low energy, brainfog, obvious inflammation, some lesions, and still sport several colors, sizes and configuration of fibers; among other anomolies. I truly am blessed that the pace and severity has dramatically fallen off, in part, perhaps from long term Doxycycline. Yes, I know; antibiotics are not always perfect; I'd love to have an effective alternative. Many things applied, internally or EVEN EXTERNALLY, without genuinely and fully understanding, can cause damage; even well touted morgellons miracle cures. Be wary, careful and thorough; it does matter.
If (IF!) immune systems seem to be (what are the stats accross the board?) down, whether as a cause or as an effect; what (are the names and types of) tests that are definitive to check and continue to monitor the immune system; and/or the white blood cell count? Are these tests expensive? Definitive? Are ther at home ways to do the same monitoring? Is this even a decent theory; to see what condition my condition is in; to be able to custom beef up one facet or another of health with natural solutions? I don't know, even, just how dangerous my ignorance really is.
Does ANY soul out there know where there are 2010, or maybe even 2009 accounts of recent web/press/any mentions of Dr. Harvey, that used to work for NASA, and was on some mainstream Morgellons board of directors? I can't seem to find much; so any and all help with my lack of computer research savvy would be greatly appreciated.
Sincerely;
"Cynic"; AKA <
DadSONvolvoProject@hotmail.com >