Fracty,
I feel the same. If I knew the complete answer I would want to share it with anyone afflicted by this horrible disease. It has changed my life in ways that 4 years ago I would have laughed if someone told me my life would be turned upside down. I know how to cope and deal with external symptoms most of the time but does not completely fix the scalp issues just numbs them. I know there is much more to this like many other on this board researching this for many years. We need to address all aspects of our immune systems. I think hormone disruption and a lot of other things play their hands in this along with diet and life stresses. There is also environmental biological contamination by bio pesticides! Katinka has done some great research on this subject. She knows how to put it together in a very understandable way and I admire her for that.
Just what my opinion is. I don't care what insect is attracted to mold you have to have a lowered immune system in the first place to allow it to enter. Obviously I do. Maybe the multiple surgeries (automatic antibiotics intravenously) Car accident (Stress on the sympathetic nervous system) in one year did it who knows! Took many years beyond that though to totally show its self.
In other words what passes EPA has more to do with non compromised immune systems that have not been exposed to any recent stress whether it be surgery, life changing stress, undiagnosed cancer, auto immune disease,viral,fungal,bacterial or cancer treatments like chemo therapy.
What left the door open? Who knows yet? I had Fibromyalgia bad 6 years ago it got better why? I have no idea but did many things to fight it including taking ketoconozole. I also had high antibodies to EBV when I was initially tested right after exposure to someone with MONO. I have my theories but why did I end up with this? Is it just another stage of what made me ill? I have know idea. Was it an attack on my sympathic nervous system that started it all? don't know. Genetics? maybe. You see we could analyze so much and still not know.
Ok I'm done off my soap box I'm sure it has all been said before.
If this f....... gel gives me a good night sleep that will allow me to fight the rest I figure why not give it a try
I also have proof of insect involvement so this is not just some symptom of something else.