[belle9]

I can never see an end to this. How are you symptom free? I have been doing everything advised by experienced people on this site and I simply get slightly better and then they have what appears to be a hatching cycle and I get worse again. I always get better when I am not having to work (weekends). Popping out fuzzballs seems to be my lot for the last ten months.

Originally Posted by Enviro Girl

I contacted her, as well. Sure, I have biiiiig hope after hearing of a 3rd state's success stories (prolly at least 8 ppl) and 1 of them being symptom free for almost a year - But what IF? I could regress and start popping fuzzballs tomorrow, I'd be devastated. Still, I want to be prepared...
NONE of us knows what happens with this down the road, either. Are we gonna be OK? Those folks passing away that were on lymbusters is terrifying.
We don't have time for ANY Reindeer Games. We need to get this OUT of us. We need to be armed with a variety of solutions to do so. Only #'s of us will prove success with any cure/future prevention.
I'm willing to help anyone else (except the CDC) further their research, because we deserve to have a variety of good, safe options. I'm not in this for ego or $, if Agnes has got something better than what I took, I will invite her to put her info on healthemorg.com - Or even if I'm just liking the way her research is going, I'll offer to get her some people to survey from there, as well.
Fastest, safest, cheapest, best is what we need to WORK TOGETHER to determine: Go Agnes!