[maryok]

Please forgive me but if I don't vent I'm going to absolutely EXPLODE! Yet another experience with a so-called "expert" has made me see very clearly that the chief issue with Morgellons is NOT "delusions of parasites" in patients -- but instead "delusions of grandeur" within the medical community.

Afraid this is going to be a rather LONG post ....

My latest episode, which some of you may have read about: quite by accident, found out about a "parasite specialist" and went to see him two weeks ago. Coincidentally, two days later, while waiting to hear about my test results, I learned about Dr. Harvey's research into Morgellons -- and his success with treating it. So naturally, I forwarded this information to my doctor.

Last week I got a call from him, expressing his displeasure with being asked to look at another doctor's protocol. Turns out, what REALLY sent him over the edge was my suggestion that he contact Dr. Harvey about any new developments he might have found. DO YOU KNOW WHAT MY DOCTOR ACTUALLY SAID TO ME?!! Something along the lines of, "I'm a well-known NY expert and don't think I should be the one calling HIM. If Harvey wishes to contact ME, I'd be "willing" to talk to him..."

My reply to him: "Fat chance of that, doctor." I informed him that Dr. Harvey is the ONLY doctor who has done extensive research on Morgellons -- and the ONLY doctor who's actually been successful in treating it. I also let him know that Dr. Harvey is ALSO an "expert," having worked for NASA -- and that he has a VERY long waiting list of patients who want to see him (ie, he has more important things to do with his time than kiss your butt.) In other words, don't count on Dr. Harvey contacting you....

My chief outrage: he was supposed to get back to me the next day to give me my test results. He didn't -- and hasn't in the days following. Now it's almost two weeks since I've seen him and, he STILL hasn't given me my g-d test results. So I just called his office today and told them I could not wait any longer -- to please fax my test results to my primary care doctor so I COULD GET TREATED!!! I'm sure my regular old non-expert doctor will have no problem prescribing Dr. Harvey's protocol.

Thanks for letting me get this out -- I feel so much better!!!! Have I told you lately how much I love you guys?!!