 Update
I have been on this site for almost two years now. Joined to help a friend who thinks he has Morgs. I didn't believe him. I started experiencing wierd derm symptoms (massive itchy outbreaks on my head) that lead me to scratch and get staph infections. I have had them many times. I eat certain foods (or different foods, can never tell) and my head will break out again. I have seen white fibers coming out of my pores. From very tiny, thinner than sewing thread, bright white, to thick cotton thread. (maybe 30 at once coming out of my face, the thin ones) and one or two at a time of the thicker ones coming out of my thigh. only 3 instances total. I have been to 3 dermatologists. Lotions and cremes. The staph infections are real. I have shooting pains, joint pains, etc. Cramping, etc. Lots of brain fog. This is complicated by the fact I also have a brain injury, unrelated! So when I started to get more foggy and worse, I just thought it was my aging brain injured brain, and not something NEW.
Seeing that morgs is common with lyme + patietns, I got tested. PCR from Igenix and their western blot was positive. My CD 57+ was 27, 26 and down to 24 in the last 18months (normal range is 60-360) for Natural Killer cells.
I was treated w antibiotics for 5 months (Doxy and Amoxy) now I am going to do a 5 day urine test Igenix Lyme Dot Blot test. I have to take Doxy Amoxy and Flagyl for serveral days and collect the urine. I have to look this all up. I am doing Porphyrins test right now.
My lyme doctor believes Morgs is real and that it is related to Lyme. I had him do all the test for the Mold Warriors guy (for get his name, fogggy) but now he doesn't want to talk to him. Saying his work has no scientific proof. I'm discouraged, especially since I got alot of tests done including HLA tests which did show up some genetic stuff. Is there anyone out there who knows how to read HLA results??
I have been doing herbal treatmetns for lyme, they made me as tired and achy as the antibiotics did. I had to move out of my apt, (4 story walk up) because I coudl not do the stairs any more when I was in treatmetn. So tired and achy.
I am continuing to remain positive. The biggest impact this has had has been on my social life as I am afraid to get close to people if this is contagious. My mom has itching on her head now, my sister's kids have rashes, and my sister was hosptialized with lung problems. (clamydia pneumoia? they never tested as far as I know) none of them believe I have affected them, which is good, and I pray that is true yet fear they are in denial.
I dont' know if I got this from my friend. (several of his other friends also have symptoms)
He feels really bad, I try to tell him I got bit by a tick that was unrelated to him. And that peopel can contract this from many places and that he doesn't have to be the casue, it could just be "out there"
I have had problmes figuruig otu how to log in here which is why i have been away. Also my doctor did not want me to dwell on this too much to not make me MORE depressed.
I am trying to do laughter yoga to make my NK count go up. If you laugh you actually increase your natual killer cells.
I keep you all in my hearts, and pray you may have the courage to over come this obstacle of this body wiht ease and grace.
Love, Sprite  |