[ladycolorado]

Hi Dereck. You pose an interesting question. I think with some new people this disease is hard to deal with. Perhaps they feel shy and reclusive still. perhaps they do not know what to say. Or perhaps they are still trying to undestand what is going on and just prefer to read.

It is true I have not posted in awhile. This is for a variety of reasons. I will explain.

As far as spilantanthes achmella the plant I have and am growing is doing fine under the skylight but it is getting colder here so it is more dormant and it is not growing very fast.

I do not want to kill it it has only borne two tiny flowers and I cannot harvest leaves because I am afraid I might kill it. So on that matter I shall have to wait.

My mother is fine but had some health problems. One is she is 72, broke her wrist and it did not heal well. It had to be operated on it is healing fine but it will be a little crooked. Needless to say I have been helping her around the house.

She also has digestive problems and perhaps needs to have one medicine she takes changed, reduced or eliminated her ekg showed her heart was beating slow. These issues concern me some.

I have been seperated for over two years and still no divorce filed. I am working on it as I have little rescources. As for the "spouse" he may as well be called useless. Getting anything out of him would be like squeezing blood from a stone. I do not care to elaborate further.

I first joined this board when there was like aporximately TEN members. If I read the current member count correctly, there was something like 3,335 members? Big change huh?

So I like to post when I feel like I have something important to share. With all these members I like to give them and new ones a chance to post and share too.

Many people like to discuss theories which is fine but to tell you the truth I really am NOT so concerned about who and or what caused it, where it came from etc. I really DON'T. I am more concerned about us getting as well and as strong as we can and having a decent quality of life.

I used to give alot of support on my own time for quite a long time. I have learned alot really. I do not know much I guess as I still learn new stuff every day. I email someone on here I do not hear back from them and have had no requests from anyone and really no pms from anyone here.

So I feel kinda useless on that front. It is ok because I know there are many nice caring people here who fill this need for others. I am glad and like I said there is much interesting info people post here as well.

I do still take medicine and am fine. I get tested and all is fine regarding my tolerance of them. Yet some people think I should just go off everything and do not understand that I have this disease BAD despite the fact that it is well controlled.

What I have been doing IS important as my treatment can help future sufferers. Perhaps it will also help for this disease to be FINALLY recognized by the mainstream as well. That this disease is a very REAL and that it can be most debilitating.

I am still seeing a good doctor and I am happy to say that I am improved enough that I only have to go for checkups once every 3 months. My medicines are MUCH less than they used to be and costs have gone down considerably.

I also want to report that yes I DO still take lithium orotate natural supplement to protect brain function and for over a year have had ZERO negative side effects or interactions.

I cannot afford all the naturals some take. This does not mean I do not endorse natural treatment. Also cheap and effective treatment as many of us are poor.

I juice organic fruits and veggies, I eat pretty well and I go to ethnic markets to find herbs, spices and good food. There is no real health food store in my area. So I make good with what I have available.

The search engine on this board is terrible. I search it and I do not find what I am looking for most of the time. This is frustrating.

I want to say everyone is really nice here and I do love this place and everyone here. Also that YES I am still around. Although I am not cured my life is much more tolerable regarding Morgellons Disease. If I had not found this place it would have been a much different outcome indeed. Thanks.

I miss alot of the folks I used to know on this board. I really do. With the Holidays and everything I have had much going on. My nieces are currently visiting. I can confidently say after two years I have made NO ONE sick.

Dereck I hope you are well and thanks for asking this question. It is a valid one. Today I came in to post something I found this A.M.

If anyone pms me when I check private email I get notification of it and I will respond.


(LC)

P.S. I also want to let everyone know that I am NOT a member of lymebusters at ALL. This person uses this username all in caps. This is NOT me. I do not think the individual did it out of malice however. This is just so anyone who reads there knows this.

I also want to add I DO like this place and you will hear from me from time to time.