One of the most important thing that many who get better do is FarInfrared treaments. There are many ways to get FIR. This video shows the FIR pad I've been using almost 2 years:
Morgellons: FAR Infrared Pads and the Staninger Method videos
I've never done the FIR saunas, but people swear by them.
This is an excellent site for describing what FIR is and the benefits of it, which are extensive:
Health Benefits of Far Infrared
For anyone who is struggling and can't seem to find the right treatments to make a significant difference, you have to look into this.
There are a number of ways to get FIR - spend sometime googling it.
SS