Welcome John,
Have you begun treating yourself?
Its best to think of this as one massive long detox - the aim is to purge as many white bits, filaments, specs etc from your sinuses (eyes, ears, nose, mouth), digestive tracks and skin.
The simple products/chemicals seem to work the best - check out the treatment threads. Your symptoms and problems sound like mine: these are the mains things I try and do to help:
Morgellons UK - Awareness Campaign 2009 - Morgellons Disease - Support
I would definitely recommend you weave citronella oil in your treatments, if you see flying stuff.
Jo