1. State you reside in Texas
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? Lived on a lake for 1 year but already had M but have lake house that frequent also
4. Do you have city or well water? City
5. Do you live in a heavily treed area?lots for Texas
6. Age at onset24 I think
7. Number Live in of years affectedabout 7-10, really bad past 2 years
8. Any other family members affected?Possibly son
9. Your occupation at onset?Executive assistant
10. Do you own pets? Cat? Dog? Other?bulldog
11. Have/had you traveled to California, Florida or Texas? Europe? Other?All
12. Do you/have you garden, hike, camp or spend allot of time outdoors?love to garden
13. List your activities and hobbies.gardening, shopping
14. Have you used a public whirlpool or pool?pool
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). will provide Thursday after complete blood work comes back - currently no
16. Do you smoke?Yes
17. Any medications you have taken or are taking?have taken, birthcontrol, amoxicylyn (sp) vfend, niacin oral tabs, clindamyacin, doxycycline, picc IV will have to get name of IV meds it was an antibacterial
18. Do you drink more than 8 cups of coffee a day?1-2 large starbucks a day
19. As far as lesions, have you had more than 10 at a given time?yes
20. What part of your body did the lesions start? right neck cycst lesion started on right cheeck
21. Is there any area that they are most prevalent? If so, where? right cheek
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?Yes again right cheek, but has spread all over - head to toe and front to back
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)Lesions Face – feels like biting or stinging Large lump on back of head/neck –Lesions Arm Left arm has a large lump kind of like back of my neck now.
Lesions Chest Lesions Buttocks Lesions foot Lesions Hand
Veins in arms larger and more pronounced – mom asked why my arms look like this?
Thin hard translucent red rod like streak on face moves from nose to cheek to lip corner
Black sand like specs on skin (Confusion and hard to concentrate – difficulty organizing my thoughts
Pressure in my jaw in the morning feels like if I move my mouth I might break the right side of my jaw. Eye twitching = Eye Floaters
Foot wiggles even in my sleep – husband can’t sleep in same bed it bothers him so much and I don’t even know its happening.
Agitated at times for no reason with a short temper and no libido. Can be in a great mood and suddenly become so agitated that I almost hyperventilate without any trigger of stress. With stress all symptoms worsen ten-fold.
Extreme fatigue (last 3 months May and July ‘09) last 2 weeks has been most sever normally up by 6am and having hard time moving by 9:30am.
Extremely Sensitive to bright lights (was driving and could not keep one of my eyes open it kept closing and oozing)
Blurry vision at times never in both eyes at the same time but have experienced in each eye.
Eyes become bloodshot for no reason (indoors at work with no irritant) I look like I’m on drugs this is getting increasingly worse.
Something floated across my eye looked like very small worm (only happened once)
Skin color fluctuates from very dark to very red to normal or blotch normal sometimes pasty feel to skin (primarily upper extremities and face)
Hairs on my arms seem to have increased and stand-up (like if you created static electricity and ran it across your arm)
Feet, from toes to about halfway up my foot turning black – when this happens it is typically accompanied by a bad cramp and then numbness
Fungus coating tongue
Healthy Teeth breaking when not eating just speaking Feels like something is moving under my right back tooth.
Deep lines in my tongue that won’t heal? Lips crack and very dry some days then other days are fine can see something moving in and out of the corner right side of mouth and lips
Swollen hands and feet every morning my face is swollen much of the time also. Some type of film over my toe nails very hard substance and underneath toenails – very very difficult to cut toe nails
Migraine type headaches. Massive
Ear pain until something broke through the skin then immediately went away.
Cravings for sweets has significantly increased (I am trying to stay away from sugar it seems to aggravate symptoms as does stress)
Muscle cramps in feet and legs sometimes for hours where hot water, walking etc.. does not release the cramp (does not feel like traditional Charlie horse) The pain is much stronger and typically happens right after I lay down to go to bed.
Joint pain in my right knee
My blood pressure has continued to increase
7/7/09 – symptoms getting worse – feel heavy pressure and movement in abdomen (from above pelvis upward) (doubled over) Vomiting past 3 days (stringy things worm-looking with white thick mucus or bile coating) – lesions increasing all over body – feels like I am dying – hard to hear out of my left ear and my voice keeps coming and going over last 4 days. My heart has suddenly begun racing and will stop as quickly as it started.
7/10/09 – My voice will come and go mid-sentence – very nerve racking – have to strain to speak. Large lump in the roof of mouth and still on right check. Good news is right cheek lesion is getting better with the DSP. Guess I should get some of my own – reminder to ask where to get…
when I chew white tear shaped larva like things is attaching to the food and coming off in little white hard balls.
7/16/09 – can’t fit into any of my pants my stomach looks like I am pregnant (just menstruated can’t be – much less no sex so…) – stomach making crazy noises
7/16/09 – throwing up – doubled over in pain – feel something large in abdomen – really hurts!!! Red raised line (1” wide and 3-4” long in abdomen with a large red raised dot (looks like spider bite) near belly button – either the front or back of the raised red line.
7/17/09 – Thank god the stomach has gone down quite a bit but have awful burps and gas. Husband made comment that he has noticed how seldom I urinate and was wondering what I was doing different. I use to urinate very frequently and multiple times a night, now I go only a couple of times a day. Maybe due to mouth hurting - There is a new nickel size lump on the left side of my belly button – does not hurt.
7/19/09 – My stool had the largest slug (blackish grey with green like dots 1”-2” length don’t think was the entire organism) this scares me!!!!
7/20/09 more slug in stool (took samples 3 not sure how to collect) one smaller snail looking thing when put in container with water was alive – stayed alive over 5 hrs – moved and bubbles (don’t know what to do – can’t be good) – smell is like ammonia
7/27/09 my toes are swelling again was up all last night with foot twitching (I guess what they refer to as restless leg syndrome 4am took cold medicine 4 tbs to put me to sleep)
7/28 the lesion on my face is coming back in full force. New lesions down right side of arm. Organism in teeth layers of my lips and mucous membrane in mouth sloughing off (looks like what is in my nose almost like a snake shedding skin hard to describe) Lots of crawling in nose today. Lips are chapped again I look dehydrated but I’m not.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? dermotitis, fungus infection, thrush, Chronic Fatigue, DOP, rash
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