[Tylee]

Tylee Symptoms and timelines 2005-2009 p1

First I would like to know how you all got diagnosed and what drs. Are helping you all. Mine are dismissing parasites or morgellons and I have lost 3 drs. Now I have none as they do not know what to do or dismiss my symptoms.

2005---Pelvic Injury Nerve Damage. 3 years treatment and pain tabs and vaginal injections etc.
2006—Breast Lump removed.
2008-Hysterctomy due to endometriosis and additional pelvic pain.
2009—Moved boxes in basement after 3 years during my recovery. Full of clothes etc. a lot of physical moving, a lot of boxes.
2009—2 weeks later. Wrist pain and swelling at Ulna bone.
2009-Increase in pain and Ulna bone protruding.
2009—Right wrist starting the same. Very painful at times in both wrists during driving etc.
2009. Started clearing boxes and sorting and packing etc.
2009--2009--Had root canal due to pain. Root canal redone again same tooth.
2009—Went to aquarium and put hands in pool of fish that looked like stingray like type fish. Public were allowed to do this and touch these fish.
2009--Pain from my hysterectomy incision starts up again. Sharp stingy pain.
2009—Had large amount of shrimp with cocktail sauce at dinner. Bad abdominal pain and diaharrea. Pain lingered for about a few days. Had blood in stool during the week with dark brown mucus.
2009--Noticed nits in my hair really bad. No idea how I got this. This was the start of all this this is when it really took a turn for the worst and all that followed. Treated 3 times nightmare--treated pubic area also due to the extreme crawling there.
2009—Continuing with sorting and opening boxes. At closet one day and got bitten 3 times and several more over a 1-2 week period . ( I presumed they were bites). Large with red centers----blistering around some and others just plain bites. Hurt really bad upon bite. I have photos of all my bites and skin swellings etc.
2009—Vacuumed apt. Emptied canister into plastic bag. Approx 20 mins later all knuckles and other finger joints skin
on both hands swelled up and veins were very prominent. Blueish red at these sites. Fingertips underneath turned a blueish. Felt like hands were stinging all over.Welts came up on all finger joint knuckles in about 4 mins. Still the same have has not changed but flares up. Oblong looking welts raised that fit the shaped outline of knuckles and skin.
2009—Started to experience crawling on my forehead at night in bed. Though bed bugs or dust mites or something.
2009—Went to dr. told me I was hallucinating and I “probably” had scabies don’t know but gave me a “catch all” cream permethrin. Gave me worse symptoms of severe deep crawling, sunburn type rashes, sharp stings in body. Feet especially. Blue red lines under my skin. Fingers, eyebrow.
2009—He referred me another dr. and she said probably “formication” or related to your HRT patch. Gave me creams to use but no help and tabs to sleep etc.
2009—Said she would contact me to help with my symptoms. Never heard back from her.
2009—Concern about my hands went to a new dr. and the bites etc. Brought samples of grains or unusual things I found around the apt. or on my skin. Just things I had not seen before. Maybe something ---maybe nothing. He did not look at them he just told me they were just bits from clothing and my problem is my apt. and a bug problem. Leave it. Reffered to Rehumatology/Immunology about wrist. Told to wear brace and not type on wrong ergonomic table, over use of wrist injury of some sort.
2009—Went to dermatology re: finger welts etc mentioned “M” was told do not believe in that gave me something to sleep and help with any inflammation in the body.
2009—Got strange pimple on breast with line of dots next to it he said I scratched myself.

2009—Had blood tests etc including for LUPUS and other immune stuff all came back NEGATIVE.
2009—Getting retested for Lupus. Was given fluconazole for
2009—My symptoms are the following internally and physically over the past 2 months:

--Crawling sensations and biting stings in feet, pubic area.
--Crawling sensations on face, forehead, tingling tounge, crawling sensations in ears, nose stuffy with grains.
--Tounge has red spots on it, very thick white covered with a hole, furrow that has gotten bigger and bigger. (noticed after eating wild salmon and mixing a strong probiotic powder into some veg. same night)
--White patches on skin. One has a dark blue line next to it inside of my eye corner.
--Lips had white thing protruding on right side. Slightly larger lip now on right side change in appearance slightly.
Tingling tounge.
--Notice white protrusions on skin, like small papercuts others just skin protruding. Very small.
--Left wrist ULNA bone very prominent with swelling. 4th and 4th fingers have distinct loss of tissue at the knuckle in between these two. Only happened over the last week. Hands getting very boney.
--Feel like bits in my eyes, dust or something. Only happens in my apt.
--White grains in my underwear.
-- Loss of eybrows falling out. Very thin and loss on one so far with itchy eyebrow.
--White grains in my apt. My apt. gets very very dusty---dust mites?
--Black specs on countertops.
_Oblong specs in bed—possibly bedbug droppings? Was told had not bed bugs but they found one.

--i ONLY SEEM TO GO THROUGH ALL OF THIS IN MY APT. especially the itchy grainy eyes and stuffy nose with grains and my ears all n my apt. only ONLY.....SO FAR....

I KNOW THIS IS A LOT BUT I HAVE FOUND NO ONE TO HELP ME YET EXCEPT THE LYME PLACE WHO KNOW
OF SOME OF MY SYMPTOMS. WHERE DO I GO FROM HERE. I GET MY RESULTS FOR ANY TICK BORNE OR ANYTHING ELSE FROM THE BITES I GOT. I BROUGHT UP MORGELLONS TO HER AND SHE SAID MAYBE. SO SHE DID NOT DISMISS IT. DO I STILL GO TO GINGER SAVLEY . LIVE IN THE SAN FRAN –PALO ALTO AREA.----Tylee