Thanks to both of you, both of those posts did bring a smile to my face. I'm not really entirely sure how long I've had this for though...I think it may have started with the brain fog, joint pain, and something feeling like it was biting my hair (it was occasional, but getting more frequent) for at least a few months now, maybe longer. I think I just assumed that it was normal to feel those things sometimes so I didn't worry about it too much. About a month ago though, I used Afrin nasal spray for allergies after going hiking in the woods, and shortly after that (I thought I was hallucinating from taking too much of the spray or something, but I wasn't hallucinating), is when I started seeing and feeling the biting and all of that and I tried to write it off as having something to do with the medicine, but the worms and all of that persisted long after the medicine wore off. After all of that, I started doing research, and that's how I ended up here
I know the statement about not knowing if I was getting better or not may have seemed like a dumb question...but I don't feel biting anymore before I see the fibers. I still do see them in the bath (and um, in new places, like when I go to the bathroom....I know that might be a bit much, and I don't really examine it or anything, I'm just trying to make heads or tails of all this) I don't know about having energy though, haha. It seems like there's a million things to do and not nearly enough time to do them in and that's exhausting in itself.
I know also that there's not really a lot that can be done except fo trying to push through all of this and keep trying to find something that works...even when its frustrating. Thanks again to both of you...I think you're both extremely brave for dealing with this for so long and I really do appreciate all the advice