Originally Posted by Sadsack  Well, that is probably true that more watch Nightline than Rachael Ray, but it is still PROGRESS toward recognition.
This is going way too slow for me, but I sure think we need to be grateful for whatever progress we've made. Whenever one of these things show, more people self-diagnose and find us....and many begin to get better!
Let me tell you a little story.
I just had the flu, and went to my doctor's office which is a combined walk-in clinic and doctors office. The doctor, nurses and office staff all know that I have Morgellons, and treat me so well. They are all just so nice to me...it's great.
Well, my doc wasn't in, so I saw the "emergency" doc who didn't know my history. There was an assitant present who did. He did his exam, asked questions about my flu symptoms, then asked if I had any other medical conditions. I hesitated, but then said "Morgellons". He looked sort of blankly at me, as though he vaguely remembered something but couldn't retrieve it.
In about 10 seconds, the assistant went and got a packet of information on Morgellons that they had printed up (been going there over a year). He started to read it out loud about the fibers and lesions, then stopped and said - as soon as it clicked in - "Oh, COOL"! Then immediately corrected himself and said, "well, not cool...but I have heard of this".
It seemed he was really pleased to actually meet someone with it, especially since I wasn't there complaining about Morgellons symptoms (I am guessing) but for the flu.
Two years ago I doubt this would have happened. This is PROGRESS. The whole experience at that office is so wonderful after all the crappy stuff that has happened.
The more the word gets out, and more doctors learn about it, the better things will be.
One other quick story. Dr. Reed in Tampa holds a monthly support group for Morgellons folks. No, she doesn't sell anything...she buys snacks, in fact, and gives up her Sunday afternoons. We've only been meeting since last October. She got involved a little over a year ago when a dear friend of her's developed Morgellons. She drove this friend for 24 hours to go to the 1st annual Morgellons Conference in Austin last year.
These are the things that happen with media coverage. Yes, it is not enough...but it is a heck of a lot more than people had 5 years ago.
We are moving in the right direction...I, too, wish it were faster, but I am grateful that I have a believing and compassionate doctor.
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