Originally Posted by Frankybme  Please answer as many questions as you can. We are hopping to find some common patterns among the answers.
If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.
1. State you reside in - maryland
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? Yes
4. Do you have city or well water? Well Water
5. Do you live in a heavily treed area? Yes- 7 acres of woods
6. Age at onset 54 (may have had longer and unaware
7. Number of years affected >2
8. Any other family members affected? Possibly husband
9. Your occupation at onset? Acupuncturist
10. Do you own pets? Cat? Dog? Other? Dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Yes, lived in California & travel bi-annually to California
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Yes all of these.
13. List your activities and hobbies. Was singing & dancing, but unable to do either due to this illness. Still enjoy camping, and video making new hobbie.
14. Have you used a public whirlpool or pool? Yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).Hashimotos Thyroiditis, Lyme
16. Do you smoke? yes, have in past
17. Any medications you have taken or are taking? Thyroid meds - many meds over last 2 years to try and treat this damn thing whatever it is- anti-biotics, ant-parasitics, anti-helmintics,etc.
18. Do you drink more than 8 cups of coffee a day? No
19. As far as lesions, have you had more than 10 at a given time?No
20. What part of your body did the lesions start? on back and in groin (but generally I have very tiny lesions that come 7 go, and do not follow typical pattern. I have urine fibers, eye fibers, nose, respiratory, & GI tract- skin is not that bad, but i do have the chronic crawling and itching- lesions are hardly a problem. I also have lots of neurological symtoms.
21. Is there any area that they are most prevalent? If so, where? Neurological symptoms are the most disabling. i have a recurrent meningitis, gait disturbances, muscle problems, chronic twitching, etc.
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? more left than right generally
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) brain fog. Vision problems- severe photosensitivity, dry eyes, and fibers in eyes, muscle fatigue & terrible stiffness, multiple paresthesias, skin crawling, burning. The worst of all, the entire spinal cord burns!!!
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? |