Morgellons-Morgellons Disease - View Single Post - support group meeting in Tampa
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Old December 30th, 2008, 11:16 AM
Sadsack Sadsack is offline
Sadsack is Praying for a Miracle
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Hi, Jill -
The meeting was an informal get-to-know you, exchange information on our experiences, etc. The best part was meeting people that you may have known from online - I met someone from this group, and another from birdmites. I had already met the others there in a previous meeting.
There is something really healing when people who are suffering the way we are when we actually meet one another. My own personal experience with this was so surreal, sci fi, that at times I felt like I was spinning in outer space, completely isolated from mankind or anything familiar.
The doctor who organized the group is still learning and has not yet developed helpful protocols. But she is a believer and that alone is something that you can't get almost anywhere.
As you know, there are extremely few doctors who will see Morgellons patients, or if they do they really don't know how to treat it.
As far as Morgellons treatment goes, I think you may be better off finding protocols online that others have found helpful. Bear in mind, of course, that not everyone responds the same way so you may have to work your way through them and "evolve" a way that works for you.
There will be another meeting in January, but the date and location are not firm (it'll be either the 4th Sunday or the 5th Sunday in January). The location will likely be at a church in Wesley Chapel.
I will post this information at least a week before the next meeting. Hope to see you there!!
SS

PS - Find a doctor of Integrative or Alternative Medicine, a Naturopath, or the like. They tend to be the most open-minded, and view the body/mind holistically and "treat" imbalances through natural means, promoting and encouraging the body to detox and heal rather than loading it up with more toxins. They can also order blood work so that any problems specific to you can be identified. That way you won't be working blindly in trying to correct these imbalances.

Last edited by Sadsack; December 30th, 2008 at 11:23 AM.
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