Many things to address, yes Jo!
I welcome any input from NMO and MDR. This would be so helpful, but I'm not going to wait for months and months for these organizations to maybe get involved.
As I've said before I'm a mountain girl, a hippie in heart and fashion, and a non-conformance. If need be, I'll just go ahead and do it. I'll share the agenda and won't need any recognition. Jo, preserving our integrity and remaining anonymous is very important. That hadn't crossed my mind. I think I can probably get an attorney friend to give some free advice on legal issues.
I do have a lot of volunteer experience with the American Red Cross (HIV/AIDS education), chair-wo-man of high school reunions (graduating class size of 520), habitat for humanity, various fund raisers, Jerry Lewis carnivals for MD....
If I screw up on a support group issue, maybe they'll put my mug-shot on the front page of the newspaper. That would at least draw more recognition to Morgellons than anything done so far in my area!
Thanks for more ideas and info.
Itwl,
~jonsi