I like all the input on Support Groups. They are very much needed in every area of the US.
I will return to properly introduce myself to you, Carrie. Honestly, right now I am so stressed due to the recent loss of my husband and more recently, the loss of my father. Just briefly, I am a Registered Nurse with Morgellons Disease and Director of The New Morgellons Order / the Charles E. Holman Foundation. I volunteer in the office of Ginger Savely, NP and Raphael Stricker working with Morgellons patients. I will be out of town all next week and extremely busy with Morgellons patients in SF. I won't have the opportunity to frequently check email or message boards during that time.
I would like to get to know you and work with you on Bay Area Support for Morgellons. I am aware of BAMSAC (Bay Area Morgellons Support and Communication) but I will check in to find out the status of that group as soon as I can.
I appreciate all that you are doing for the Morgellons cause.
Until I can properly introduce myself, please check out our website at:
http://www.TheNMO.org
If you click on "Cindy's Diary" you can see my story as a critical care nurse with Morgellons. Our organization's mission is to fund Morgellons research, educate the medical community, promote recognition, and provide support to those patients suffering with Morgellons Disease.
Thanks again,
Cindy
ccaseyrn@hughes.net