Many trials, some answers
Hi morgellons sufferers,
Ive tried most treatments for morgellons that are out there and that i can think of.
I tried raw garlic cloves(chewed with meat to prevent burning), malic acid, citric acid, salt, DMSA, vitamin c mass doses, coQ10 mass doses, hydrogen peroxide, MSM ozonated olive oil, nutrasilver, the alfalfa bathes. I have been treated for lyme disease since i got bitten by a tick but my symptoms are all morgellons (some overlap with lyme disease as well). Drugs Ive tried include amoxiicllin, septra doxycycline, ketek, clindamycin, biaxin, flucanoazole, metronazole, benicar, tindamax, plaquenil, biltricide, etc etc.
WHAT WORKED
What has helped the most is clindamyacin it keeps me feels almost normal and stopped the "I feel like im gonna die" feeling and has helped clear up alot of brain symptoms. I have tried going off of clindamyacin for as long as a month and alot of symptoms return. DMSA has caused a massive herx heimer reaction and I take 400mg three days a week-DMSA is a chelator it takes harmful metals out of the body (make sure to take some zinc occassionally (DMSA i got from vrp.com). Speaking of zinc, zinc has just recently become a huge help since I believe part of morgellons is auto immune. Try taking zinc glucongate 150mg for four days straight, and keep up a maintence dose. Citric and malic acid seem to help with "hard" cramped muscle characteristics of later stage morgellons. CoQ10 6grams (per Hulda Clark) pisses the morgellons off alot and mega boosts the immune system but doesnt seem to help too much long term and is expensive in those quantities. Plaquenil slaughtered alot of morgellon parasite form, but after only two weeks of taking it I got some minor, probably permanent, eye damage- beware eye swelling feelings early on. Biltricide had me feeling almost completely normal but after a month of taking it the morgellons "adapted" to it and doesnt help in the slightest anymore. Doxycycline/amoxicillin combo worked great early on but now is worthless. Other drugs/treatments that helped but then the morgellons "adapted" to it include fluconazole, biaxin, ketek, hydrogen peroxide, MSM, and garlic.
WARNING
I cannot overstate the need to avoid steriodal anti-inflammaories like medrol dose packs, as morgellons spread even more rapidly in every part of the body, increasing nerve symptoms everywhere. Also, I had horrible rare side effect with septra combined with NSAID (ibprofen). Septra didnt help in the slightest.
Also...
Id like to say in my opinion the nutra silver is a complete waste of money, since i tried it, but it is apparent that sales reps from the nutra silver company post occasionally with stories of hopeful recovery using it. That is probably also the case with the miraclous mineral supplement or whatever its called as well-although honestly i havent tried it. Alfalfa bathes are nice and calmed my skin down but since morgellons is systemic and not limited to the skin i did not see any lasting improvement. Taking alfalfa tablets orally didnt help me noticeably either. Vitamin C, to me, seems to feed the morgellons
or inflammation, exagerrating symptoms and making me emotional so I dont take large doses of it-- although I can now after taking the 150mg zinc for four days. I have taken vit C (i switched to the non acidic sodium asborbate) in mass doses for three weeks and didnt notice improvement afterward although i did feel better after stopping it ( that was before the zinc). The marshall protocol, i.e. taking benicar among other things seemed to help as well.
The clindamyacin (450mg during weekdays), now occasional zinc gluconate, and DMSA have my energy up and feeling good enough i can work 24 hours on the weekend-two twelve hour shifts. I have to reorder some benicar and see if I can run a stricker marshall protocol. Tindamax I take a couple times a month. |