Morgellons-Morgellons Disease - View Single Post - Destroy my thyroid?
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Old April 13th, 2008, 09:12 PM
tcmgpt13 tcmgpt13 is offline
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Default Re: Destroy my thyroid?

Hi Terri,

I am hypothyroid and have been for quite some time (although not always treated as my TSH did not fit the numbers doctors required for treatment--symptoms as always are ignored in favor of tests by most doctors). About seven years ago I got a goiter after a bout of flu. It has gone down a lot since then from using herbs. I am also currently on natural thyroid hormone (prescription).

After reading about other people's experiences after their thyroid was "destroyed" by radiation I think that I would get extensive second opinions first (more than one even). It is very hard to properly balance thyroid hormones with a partially working thyroid. Without one, from what I have read in the past on thyroid forums from those in this position, it becomes quite difficult to get enough medication and also to keep the medication in balance, especially if the doctor is not a specialist (and even if they are, many endocrinologists are real jerks, numbers guys, who will let you suffer terrible symptoms of low thyroid as long as the test numbers are right--too bad for the patient about symptoms).

Here is a good site where there is a lot of information you need right now, including lists of suggested by other patients thyroid doctors, all listed by state:

http://www.thyroid.about.com

This site is run by Mary Shomon who has written quite a few laymen type books on dealing with these sorts of problems. Many of them can be found at reduced cost here:

http://www.iherb.com/ProductsList.aspx?c=1&cid=1218

I seriously doubt that the loss of your thyroid will cure morgellons as IMHO this is everywhere you don't want it to be (including the blood stream and the lymph system). The thyroid may be effected by morgellons but I question that it is the only organ or area of your body that is.

If it were me I would want more than one expert opinion on this issue before removing my thyroid, as it may be even harder to fight morgellons with a missing thyroid. The thyroid has quite a lot to do with your immune system function. A GP is not a thyroid expert. Not that I am saying that every thyroid can be saved, but I would be sure before I did something like that there was no absolutely no other choice. There are forums on the above site too where you can join and ask questions, although I am not sure if I would bring up morgellons there. There are also a lot of articles by Mary on various thyroid issues, plus there are interviews with some thyroid experts, including many alternative thyroid treatment doctors.

I am truly sorry that you are having such a serious issue on top of morgellons, which is in itself quite hard to deal with. If you have any questions please do not hesitate to pm me. I hope everything works out for you.

best, tcmxxx



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