 Re: Advice for sufferers and support group leaders
Dear Concernedwriter,
While I appreciate much of what you have posted here, I do believe that many of the members here are mindful of what you are saying. Trust me, I have been to many Doctors (even the Mayo Clinic) with samples, thinking that perhaps THEY could tell me what it is. I have learned well, that apparently in DOP 101 in medical school, anyone who brings in samples is delusional.
This is one hell of a disease that I wouldn't wish on my worse enemies. I am now in my 11th year with this and not until last July did I ever realize that there were actually others who suffered from this. This site has been a godsend for me, to be able to communicate with others who have this as well.
I pray every day for all of the sufferers to be able to deal with this and that a cure can be found. I don't focus on how, what, why. I really don't care if it is man-made. I want a cure and if the source can be found to prevent the cause, all the better. I am not into finger-pointing or blaming - that isn't going to help any of us. What is done is done. The bottom line is we need a truly intelligent, ambitiously driven tast force to truly look for a cure and at least, if nothing else, validation that we are not making this up.  |