Re: post-lyme disease also known as chronic lymes disease. well lidalu i understand, as with my husband being an avioonics contracxtor we have NO insurance. but most insurance companies will only cover one months treatmet even with a positive lymes disagnosis. now keep in mind we are now discussing MY deal i had when clinic open, this was NOT flat rates for all regarding the medicine part. i will saythe treatmet in ot cheap because we ARE very sick, medicines have to be constantly tweaked and adjusted (second guessing will not do can actually make things worse). i paid standard fees for visits, the first being 500 hundred dollars (look at progress reports page 9 tell me if think worth it) the last one or ant after wwere 250 dollars us. keep in mind they were VERY good about saving me money, as i only needed two checkups, harvey saved me money by doing monthly phone consultations (which by time mine ran fron 50 to ninety dollars) to see if meds needed adjusting oh yeah and good hospital to draw blood to make sure liver kidneys okay, around 100 bucks for two automated tests to save cost. they gave me an indivdualized deal with my medicine here, a contract pharmacy gave me 40 percent below wholesale, (harvey also prescribed me ALL generics, to his credit)also, they had deal going with hospital if bill paid in under 90 days you saved 40 percent regarding groshong catheter. my igenex test ran 190 dollars. so, not cheap but these folks most definately DO NOT GOUGE. yes, i had to beg my family to help, and the price i pay is hubbie working away from home. it is hard but hey my most expensive iv meds ran around 850 dollars for everything needed for one months care.. keep i mind, that includes all the tubes, dressings, and replacement ends for catheter, and pills alcohol scrub kits to keep wound site clean, when i say everything i mean everything. in the beginning , two big huge old boxes come to my home, and had delivery day got it brought here at NO charge. i know of one person who paid 100k just for ONE iv med (who shall remain anyonomous). think of open heart surgery, or cancer, how much cost would be with no insurance. the docs who gouge , are ones who charge 1600 dollars for first visit, or dr referral. dr. george scwartz in florida is one of these. yes, he wants to help, but at the same time would like to charge alot and feels disease contagious person to person, and would like us listed and segregated from society. i have spoken in person on the phone more than once. he does help folks, but i think going wrong way prescribes TOO many antiparisiticals, and also antifungals which can compromise the liver. not one size fits all for treatmet, but in my case been getting, antibiotics, an anti-tuberculosis medicine (which fights chylamidia pneumonia) , an antifungal to take one pill 1 to 2x weekly, and periodic bursts of taking mutiple antiparisitiicals at once. and it has worked VERY well. to belive me read my posts, you will se i DEFINATELY have improved tons. so yeah, we are not talking cheap we are all very tight because of financial devastation to have relief, but like one member wrote me, you gotta do what you gotta do to become well. this is why like bubbas treatment steps which are only pallitve not curative, but mostly inexpesive stuff that WORKS. the alternative was unthinkable, i had months of agony waiting to just see doc (they had 5000 man hours needed to care for patients and only a 1000 to do so) so i fought in begining the disease naturally. but to have my brain back ios PRICELESS, ad i did need this medical care as was on way to becoming crippled in my case. but also why i push dumb old things like green cumin powder, it is cheap ad effective (trust me i know when something does not help, and was how i began eating again) with NIL negative side effects. so i have tried my best to share the information i have learned to the best of my ability just being average layperson who happens to just be sick like the rest of us. i try to help the newbies to keep them from wasting money as i did , and to keep them from giving up and if like me, fight disease early like i was lucky enough to do. morgellons prays on ones weakesses, is nothing to play with (although not fatal) and is systematic, much more than skin. i have been in contact with one person ill with this for 27 years, and i enjoy it because she knows alot about herbs. i canot blame folks for being disgusted with the medical establishment, i have seen iot too. what i am trying to do is let folks know there is good care out there so do not waste money and deteriorate because they cannot find good medical help. and the closing of the clinic is NOT the end, actually will be a wonderful new chapter in comprehensive care (trust me) i can not publicly post on this for obvious reasons, but i can pm. the fact have found a cure and those willing to research a disease not even named a disease or thought to exist by most IS something. so i am just putting what is out there and what i have found out. how can a disease not recognised be insured? read my posts all, and decide for yourself. i think you SHOULD throw stones at glass houses but only if trapped inside, lol (LC). |